I went to see my rheumie today - there is a STUPID new hospital policy that means I can only see her every six months, which is just crazy. To see her any more often means that i have to be referred back to the hospital by my gp, which in reality takes months so I am pretty much screwed. This is NOT an insurance issue (I have no insurance and do not live in America) it is hospital policy, and I see hospital specialists for my lupus. Don't really have any other options. That leaves me with my gp to treat my npsle.
Otherwise my appointment went well, and I have been referred to and ENT have my vocal folds looked at as it seems I have a nerve palsy going to one side of my larynx. Also a referral to orthotics for splints and those little finger clips to hold my fingers out so I can use them better (they curl in a ball due to a brain lesion). It's really disappointing that I have so much active disease going on seeing I have so recently had another round of rituxan, but thems the breaks.
cheers
raglet
Otherwise my appointment went well, and I have been referred to and ENT have my vocal folds looked at as it seems I have a nerve palsy going to one side of my larynx. Also a referral to orthotics for splints and those little finger clips to hold my fingers out so I can use them better (they curl in a ball due to a brain lesion). It's really disappointing that I have so much active disease going on seeing I have so recently had another round of rituxan, but thems the breaks.
cheers
raglet