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Lisa_S
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302 Posts
Hi there.

I had a total hip replacement a couple of years ago. I think there are lots of different factors that may play into that answer. Immunosupressants may increase our risk of infection, and the physical and emotional stress may cause our lupus to flare. I don't have APS but I imagine that would likely be something to consider too as clotting may be an issue.

I had an pre-surgery appointment with an internal medicine specialist at the hospital before the surgery to go over my history and make sure he knew to keep an eye on my lupus bloods while I was in hospital.

My rheumatolgist's advice was to make sure I was as healthy as possible pre-surgery (eat well, get lots of rest, try to minimize stress) and make sure I didn't rush the recovery period. The surgery and recovery went fine for me, no complications to speak of. There was one med mix-up, but they sorted that out pretty quickly - my kidneys really don't react well to anti-inflammatories, and that's standard protocol post-hip replacement for most patients.

There may be other considerations I haven't thought of (just speaking from personal experience) I'm sure others will be along soon to share!

Lisa
 

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Lisa_S
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302 Posts
Hi again WP - I do NOT have a clotting disorder, so no, not everyone with SLE also has problems with clotting. I'm also on birth control - I use a low-dose version, which everyone on my healthcare team has okayed, but your doc sounds like they are on the ball, so probably best to check in with them.

I know this may sound trite, but try not to worry too much about what the future holds. With SLE all you can do is take one day at a time and educate yourself so that you are an effective advocate for your own health. Once you've met one person with lupus... You've met one person with lupus. We're all different, and so your experience will be unique.

If you are learning from online sources, you should also keep in mind that many people posting are posting precisely because they are unwell and looking for answers, so it's not really a representative group, and a lot of the online stuff is out of date, and so a bit scary - the treatment options are really getting a lot better....

Cheers,

Lisa
 
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