[SUZY C]

Diagnosed 2003 Had Really Rougth Time These Last 5 Years Just Feel Nobody Understands What A Topsy Turvey Life It Can Create After Finallally Studing And Reaching My Goal Of Being A Working Artist The Walls Came Tubling Down On Both My Working And Social Life. At Last I Am Rebuilding My Life And Hospital Visists Have Gone From Weekly, Monthly To Now Every 3 Months And Now Only Find Myself Comatosed Every Two Weeks A Month Rather Than Four. Hey Ho Prehaps There Is A Life Where I Can Control This Lupus And Not It Control Me ....

 

[marymackay]

Building Up

Hi Suzy
I'm sorry to hear of your 5 year frustration to reach some kind of diagnosis.
But I am so glad to find that you have/are beating it.

I too can relate to a lifetime of weird symptoms, 5years search, and 2 years of intense pushing for diagnosis in a rather remote area of Australia, having to go north/south to find specialists??

Yes, like you, I have had to rebuild my life, after years in my profession, and reaching the pinnacle of it, :wink2nly to have these emerging symptoms no doctor could explain. This site has been so supportive, so informative, helping to get that d/x. Off for 4 more appointments next month, to get more answers.

It is great to find someone like yourself being so positive. Enjoy life as I do.

 

[LolaLola]

Hello Suzy, Welcome here. I am so glad things are improving a little.
x Lola

 

[helloos]

Hi Suzy and welcome to the site.

I am glad that things are getting better for you now and hope that you can continue on with your art.

This is a great place for support where peopld DO understand.

Welcome again and nice to meet you .