Hey there,
Oh yes, my legs, tummy, face regularly swell up to about 2-3 times their normal size pretty much every day. In my case though it's aps, not lupus that has caused this via micro-clots causing hypothalamic instability. We did stabilize everything else that came with the hypothalamic instability (hyperpyrexia, crazy blood pressure, crazy pulse spikes) but what has remained is a hypersecretion of a hormone called aldesterone. I take spironolactone for this and it works brilliantly!
Having said that, I also have angioedema and when I have an angioedema attack my face, legs and tummy swell but my throat and GI tract swell as well to the point where I frequently need an adrenaline shot to control the swelling and give the antihistamines time to work.
Now in the past I've also had nephritis and that made my legs swell pretty badly for a while. However I was spilling protein and had gross hematuria at that point and my kidney function tests were a bit off.
The point of all the above was to say that leg swelling may be common in lupus patients, but there are so many possible causes for leg swelling (like allergies, nephritis, heart problems or even prednisone etc etc). I am not saying you have any of the above, just thought it might be useful to point out that swelling could have many causes.
Do you have swelling anywhere else besides your legs and feet? Does your throat itch when the swelling starts? Have you had kidney function tests and a U/A? Are you on prednisone at the moment?
:flowery:
Zoi