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I hope you don't mind me asking this but does anyone else find it hard to talk about lupus and how it affects you?
I can discuss it freely with my husband and I feel his family are coming round to the idea but with others I find it so hard and I try to hide it. When I was finally diagnosed 21/2 years ago one of my nurses said "Lupus but I thought that was made up for the series HOUSE".... unfortunately not!
Most of my work colleagues are pretty good and I have started opening up to some of them but even still sometimes I think some of them find it hard to understand (the ones that have a low tolerance threshold) although I think when they see me somedays looking like something that has just escaped from the graveyard and they understand a bit more each time.
Does it get easier to discuss this fickle thing we live with each and every day?
Claire xx
I can discuss it freely with my husband and I feel his family are coming round to the idea but with others I find it so hard and I try to hide it. When I was finally diagnosed 21/2 years ago one of my nurses said "Lupus but I thought that was made up for the series HOUSE".... unfortunately not!
Most of my work colleagues are pretty good and I have started opening up to some of them but even still sometimes I think some of them find it hard to understand (the ones that have a low tolerance threshold) although I think when they see me somedays looking like something that has just escaped from the graveyard and they understand a bit more each time.
Does it get easier to discuss this fickle thing we live with each and every day?
Claire xx