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Discussion Starter · #1 ·
I have had lupus for about 8 years, and just recieved the results from an mri that my ortho doc had done and it shows that i have a congenital condition
called tarsal coilation, the bones in my right ankle did not fuse together the way they were suppose to before i was born, it started with a stress fracture to that foot and the pain has not improved even though the fracture has healed, does anyone out there have this and if so what are you doing for it.
I am afraid i will someday not be able to walk because of this.
PLEASE help if possible...:sad:
Pam
 

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Hi Pam,

I'm sorry to hear about your diagnosis. It sounds really painful.

Sorry I don't have it, so can't help you there. In fact, I was thinking you might have better luck finding other patiens with this specific condition if you search for a specific forum/support group. Yahoo has quite a number of patient health forums.

All the best in your search:)

X C X
 

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Hi, I don't have it, but my 9 y/o son has it. From what the dr. explained is that the bones fused together and didn't seperate the way they shoukd have before he was born. He suggested orthotics (don't know if I spelled that correctly). If they don't work then he will cast his feet for several weeks. If we get that far and that doesn't work, then he will need surgery to correct the problem. The dr. also explained that if his feet didn't hurt, then there is no real issue. Unfortunately, my son's feet do hurt after walking a bit. We shall see what the coming months bring us. Hope this info. helped.
 

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Discussion Starter · #4 ·
I hope your son gets better soon, that is what confuses me...my dr. told me that casting it would not help and the only thing i could do was to do specific
exercises to help strenghen the tendon and muscles...
So i am completely confused now.
Maybe i can find someone on line that has been diagnosed during adulthood.
Thanks
 

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You are welcome. I'm sorry about that. I would definately consult an orthapedic specialist or another one if you have one already for a second opinion. Sorry I couldn't be of more help.
 

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Discussion Starter · #6 ·
the ortho dr. is the one who told me there was nothing thath could be done, but i am still going to go over this with my rhemy and see what he suggest
i looked at the mri results again and it also mentions a possible fracture
which would make more sense...i have done a little research and what i ahve been able to fine is that only 1% of the population have this, and if you do it was inherited from a parent, well neither of my parents have this..
so i am going to search further...
will keep you posted...
 
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