[sharon1953]

My daughter strted having trouble with her teeth about 9 mos ago.having to have alot of work done root canal and all,does this go along with lupus?Also she is in so much pain in joints go fron side to side and swell ,she started plaquniel 200mg. 2 weeks ago nd still having tummy trouble and feels like crap but has towork and has 6 yr. old,divorcedfathe of son in hiding to keep from paying child support.She goes to dentist today for 1 tooth that started hurting bad yesterday.
Thanks

 

[MelissaLJ]

I'm so sorry that your daughter is suffering so much. I just wanted to say that I have suffered tooth problems in the past few yrs. I also suffer general pain in my teeth and jaw which is new. Have no idea if it is related to Lupus or not, but thought I would share.

Good luck to you all...

 

[Maia]

Does she have a dry mouth at all? If she does, then that can certainly contribute to dental problems. I don't doubt that infection can ramp up lupus into a big flare - it has certainly happened that way for me at least.

If she starts to feel too ill to work, then perhaps she can talk to her doctor about a short trial of prednisone to help her get through until the Plaquenil can start to work better? That certainly helped me continue to work that first year after my diagnosis...

 

[F Jean]

teeth problems

I too have had tooth problems from dry mouth and also melissa, for about a month I've suffered from jaw pain. I'm sorry you've had that but also glad to know I'm not alone. Most people do not understand, so it is great to have such support!! Jean:lol:

 

[suebehar]

I have SLE and Sjogrens, which results in dry mouth and therefore, teeth issues. There is not enough saliva to clean your teeth naturally. Have your daughter begin to use a flouride rinse (Act is very good) and watch her sugar intake. I hope she feels better soon.

Susan

 

[sjink]

Hi Sharon

Sorry your daughter is coping with such problems just now.

Teeth and mouth problems (ulcers, dry mouth) have been with me for the past two years. I have had a lot of mouth infections and on three separate occasions developed a disorder called "dry socket" after teeth had been extracted - the site of extraction failing to heal, not a very nice problem as your breath is yucky.

The last infection took three different lots of antibiotics to clear up and the lupus flared. I was referred to our dental hospital and they think probably dry mouth (from Sjogrens) plus immune system response being all haywire with lupus were the prime reasons. My immune system did not have sufficient of what it takes to fight the infection on its own.

Your daughter needs to be absolutely meticulous with mouth hygeine, brushing, flossing and flouride rinsing. Especially I find after eating anything sugary or anything that may lodge in the gums or between the teeth. If your daughter goes out to eat I suggest she carried a brush, or at least some mouth rinse. I usually manage to do this discretely in the ladies.

Since taking such thorough care of my mouth the infections have receded. I have mouth ulcers just now and one very painful one looked like it might be going a bit mad but it has started healing quicker with extra rinsing and avoiding eating on that side until it calmed down. I also use SST (saliva stimulating tablets, pleasant little "sweeties") during the day, sip water and at night rub a gel to keep mouth moist on my mouth. My mouth dries out at night just now as my nose gets blocked with hay fever symtoms and mouth breathing makes dry mouth worse.

Sugar is a real culprit and I find that if I can just have it as a treat not only is my mouth better but so is my fatigue. But when I am miserable or stressed that is all I want! :lol:

Hope this helps
Love Sara
x

 

[Nutty]

I, too, have problems with my teeth. I seem to have at least 4 fillings every time I go to the dentist (every 9 months.) It's frustrating. He said it is from dry month and some of the medications I am taking. He also said that they can only do proventive measures. So, it sounded to me that it is inevitable that I will lose my teeth from this one day. I certainly hope I am wrong. He recommended using a flouride rinse as well.

Nutty

 

[halfpintfl]

Hi there, I am so sorry that your daughter is having so much pain right
now, I think most of us have been there. Sjogrens is a real culprit, as it
really does a job in the mouth. I have little pieces of candy -just in the
living room, so that I can limit the amount that I am taking. But, I have
a water bottle in the kitchen, at my computer desk, beside my chair in the
family room, and one beside my bed. And I make sure they are full every day.
You have to keep that mouth moisturized. I even have a bottle in the car and
I take one with me into every store and dr.'s appt. Try it, and I wish your daughter all the best.