Hello there,
I think Maia has given very good advice.
I met my husband the month before I came out of a two year remission! I didn't "tell" him about my lupus as at that time I didn't have a diagnosis so couldn't really have said it was that even if I suspected it (my Mum has dermatomyosistis and lupus).
As the months went by he could "see" how I was being affected. As I had divorced 1 1/2 years before, I think I was rather relaxed about how he would take it.
In short I figured that if he couldn't adapt to the ups and downs and just accept me as I was then he wasn't the right person. I think that took a lot of stress out of wondering how much I should/shouldn't tell him.
In the end he "passed all the tests" as he remained flexible, considerate and loving through everything and proposed to me the month I was diagnosed (no connection

).
I think that you have done the right thing in telling him something. It would be very wrong to try and hide what's going on. Often when we meet people we try and show the "best" of ourselves. Being ill meant that I was never able to show anything other than who I really am. I think a lot of non lupus sufferers could learn from that :lol: as it means the person really gets to see who we are and accept (or not) what they see.
bye for now,
Katharine