:sad:Hello everyone, I haven't posted on the boards in a long time. I have been way to sick. Lupus has really taken over my life this last two years!!I have really been struggling to grasp this whole disabling disease and it has gotten the best of me!!:blink:I have literally been just about home bound. Going from my bed to the recliner in the living room daily. I have only been picking my son up from school and then back home and there have been several days that my husband has had to take off of work early to pick him up because I haven't been able to. My periods make lupus even worse(just about unbearable)The intense bloating and cramps and swelling on top of lupus are just awful.
I am at witts end. I have a good Rhematologist but I just don't get any better. I don't have severe organ involvement but I have the most dibilitating aspect of SLE. This stuff is a CRUEL disease. It stealsl our lives literally! I would love to hear from anyone who had found some kind of relief, someway ,somehow:worried::worried:I always end up going up on steriods(prednisone no matter what) and I take Imuran and have tried just about all of the other meds(NO HELP TO ME ONLY MADE ME WORSE)I'm only 40. I lost my whole 30's to LUPUS!I don't want pity!! Just compassion and any advise or help from someone who has been there would help.I am considering seeing doctor's in other states in I thought would help!! I don't know how I keep hanging in there. I just want to live so bad and I love my 11 year old son. But I am so sick of PAIN and MEDICINE SIDE EFFECTS!!!!!Someone give me a shout of encouragement!!!!!!!THANKS:bow::bow:BEFORE I LOOSE IT

hno:
hno: