Hey oh boy I sure know what you are talking about. I was diagnosed 2 years ago after 7 years of increasing symptoms. I have taken just about every med you can think of just coming down again from prednison 50mg taper down to 10mg baseline now on pain patches for the pain just over it like you and I am 42. I find a day off i am stuffed and laze around the house but the pain patches change every 3 days and the first night i do not sleep at all if Lupus aint bad enough then that as well as 3 kids at home thank god I have a great husband that stays at home while I work a 9 day fortnight with full time hours otherwise I go mad but we all cannot do that.
I just want to let you know that I know exactly the frustration and fed up feeling you are having and let you know you are not alone.
I have been on methotrexate, plaquenil and now imuran with the pred and all the others what a drag the Lupus is I hate it too.
Thanks for listening
hey chin up what I did not tell you is I fundraised for the Australian nsw lupus organsiation in october and raised 147.00 so it was something I actually felt control of helped for a while .
Kezza
I just want to let you know that I know exactly the frustration and fed up feeling you are having and let you know you are not alone.
I have been on methotrexate, plaquenil and now imuran with the pred and all the others what a drag the Lupus is I hate it too.
Thanks for listening
hey chin up what I did not tell you is I fundraised for the Australian nsw lupus organsiation in october and raised 147.00 so it was something I actually felt control of helped for a while .
Kezza