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Discussion Starter · #1 ·
Hi

I just wanted to let everyone know that thanks to all of your support and words of encouragement, I have booked a private appt at London lupus centre on Monday.

I am very nervous but have decided that the only way to get a reliable diagnosis and proper treatment is to see a lupus specialist.

I feel guilty at spending the money but my long suffering hubby said he will take it out of my coffin money!! As he feels if I dont get treatment soon thats where I will be!! A bit dramatic but emphasises my quality of life or lack of it at moment.:rotfl:

So thank you to everyone for your support

Deb
 

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Hi Deb, I think i know you from another site :) I am so pleased that you have booked a appt for Monday...great news
This is what i did and it started the ball rolling for me. The LB is a very good hospital and all the docs are lovely and they know whats what.
Good luck lov sarah x
 

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Hi Deb,
Sounds like your hubby is a keeper! I hope you find out something when you go. Good luck.
Mary
 

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Hi Deb,

I will be thinking of you on Monday :hug:. Is anyone going with you for support? Let us know how it goes.

Take care,
Lazylegs
 

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All the very best for tomorrow. I so glad that that you have the appointment. Whatever happens it will probably be the best money you have ever spent!
Take care.

PS I like your husband!
 

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Good Luck Today Debbie!


I shall be thinking of you whilst at mine today!

Lesley
 

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Hope your okay after your appt today!!

Take care!

Lesley
 

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Pollianna
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Hi, am new here wanted to say I hope your appointment went well, awaiting an update . Am sure your gonna be bushed for a while after the trip:) loved the hubby's quote. he does sound like a keeper
 

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Discussion Starter · #12 ·
Hi all

Thanks for your kind words.

I had my appt yesyerday with a wonderful doc who listened to me. It was an amazing experience.

He said I have mild lupus and sticky blood. He said I have neuro symptoms showing the disease is affecting my brain. This my hubby found helpful as he finds it hard sometimes!

He is going to treat me with plaquenil and wants to see me again on Thurs with my blood results and to explain some things.

He could not understand why I was not being treated as my bllods, symptoms and family history were strong.

I would definitely advise any one unsure of their diagnosis or treatment to get a second opinion.

Deb
 

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Hi Deb,

That is great news!!! I'm so glad you went to that appointment and that you are going to start treatment.

Hopefully this will be a new beginning for you,

Katharine
 

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Hazel595
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Deb....so glad to hear that the appointment at the LB has proved sucessful. You sound a lot more positive and hopefully and within the next week hopefully you be on a lot more treatment than you have been.

Thank you for letting us know how it went and how yur bllodtest results are on thursday....so glad the consultant gave you listening ear that you deserve the love and hugs xxx hazel
 

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Hi Deb,

I am glad you finally got your diagnosis. The Plaquenil will take some time to start working. Did the doctor suggest any other medication to bridge the gap?

Good luck with your appointment on Thursday.

Take care,
Lazylegs
 

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Pollianna
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Fantastic that you got such clear info . Such a long hard road to get there but your there :)
 

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Deb, I am very strongly in favour of people going privately to a good Consultant if they need to be taken seriously. I, and many others, have had to do this. When we tell others of how it was for us, it is always great when they decide to go. I have never known anyone regret going. Thanks for telling us how it went. I expect you are in a bit of a daze. Anything we can do?
x Lola
 

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The Other Illinois Tammy
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Deb,
That is good news. Tell your hubby no it is coming out of his coffin money and see what he says lol. Good luck with getting some much needed help for yourself. Let us know how things go.
Tammy
 

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Congratulations on getting a propper diagnosis, and more importantly, on getting some treatment.

What did the rheumy say about treating the APS? Are you going to start Asprin? The plaquenil has mild blood thinning properties too, and I found it quite helpful for the APS - it reduced my migrane frequency by about 50%.

What happens now regarding ongoing care. Will your local rheumy take over care?

X C X
 
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