The Lupus Recovery Diet?

Hi Shell,

I know we have discussed this in the past here but I can't seem to find the thread. I think everyone was skeptical of something with 'lupus recovery'in the title anyway I mean if we could 'recover' then everyone would be shouting it from the rooftops. Often those accounts you read on websites and in certain books are falsified, no-one has any way of knowing if they are genuine accounts anyway :wink2: Here is a copy of part of a post I made some years ago on what sort of diet we should follow:

Most of us tend to try and follow a low fat diet, plenty of fruit and vegetables, minimal animal fat, low salt, low sugar, limit caffeine (coffee, chocolate and caffeinated soft drinks) and drink plenty of water. We should get sufficient calcium from low fat dairy in the form of yoghurt etc.but if taking Prednisone a calcium/vitamin d supplement will be needed.

Basically there are no special requirements except some find that things like tomatoes and capsicum and other members of the nightshade family of foods may increase their joint [COLOR=#8E8E8E ! important][COLOR=#8E8E8E ! important]pain[/COLOR][/COLOR]. Others find that wheat products make their joint pain worse. Everyone is different and its a bit of trial and error and experimenting.

Lupies should avoid alfalfa sprouts because there is a substance in them that is known to cause flares.

Those who have kidney problems should not eat a high protein diet and their treating doc can guide them as to what they should be eating.

Of course if we have specific allergies to certain foods we need to avoid them, they will only rev up our immune system even more. Hope this helps,

love
Lily

Hi there Lily and cherryred,

Thank you very much for the info. I think I will give the book a miss despite the old proverb not to judge a book by its cover. Thanks also for the heads up with calcium and vitamin d, my rheumy mentioned the folic acid but I dont remember hearing about the other 2 (he did say a lot of stuff!)

I will need to start taking my diet more seriously, So far I have just cut out alfalfa and minimised by tomato intake to the occaisional tomato based pasta etc. On the whole though I do eat load of fresh fruit and veg. Need to drink more water and go onto low fat milk (Its just not the same sob sob :sad

Any clues as to what colour 8e8f8e is usually in? I dont buy many packaged foods these days anyway, I have very active kids so I am wary of some additives anyway.

Appartantly though in Australia food manufacturers do not need to declare colours and additives if they make up less than 10% of the product. There is an exception for nut products of course because of anaphilaxis.

How about the product "xxxxxxxxxxx" (Aphadopholis Bifidus) I wasnt sure whether it would be bad for us or good. The thing is, if I dont take that regularly I get Thrush every month before my period without fail (I think thats the fibromyalga) Very annoying.... Anyone know?

Thanks everyone

Shell

Hi shell,

Some of the low fat milks are nicer than others so you can try a few out and see which ones you like best. These days you can get low fat ice-cream too and I use the l/f milk for cooking anything that requires milk. Cracker barrel vintage light cheese is delicious and doesn't taste like rubber as some of them do :hehe: Of course I lovvvvvvvvvvvve my camembert and brie so I can't say I don't break out sometimes into the full fat variety :lol::lol:

I'm not familiar with that particular food colouring number, I did have a list of them here somewhere - are you sure you typed it right?

I don't know about the colostrum in the product you mention, colostrum has had a lot of claims made about it, but there is no evidence really that it works in humans (after all it's cow colostrum :hehe::wink2. If for instance it did work and has immune boosting properties as they claim it does I can't see that it would do a lupie any good. Our immune systems are already boosted so much they are attacking us :hehe: so I don't think any of us want to encourage more activity. However the other ingredients will do you no harm, in fact lots of us use probiotics because of thrush problems.

love
Lily

Just getting back to the original question....
I've read the lupus Recovery Diet book.
It makes some very sweeping statements about 'cures' which make me suspicious (Have Dr Wallace and Prof Hughes read it I wonder)
Also there are some very worrying witness stories about 'curing' or controlling diabetes as well. While the effects of a steroid-induced diabetes will obviously be greatly reduced by getting off the drug I know of no cases of type 1 diabetes being cured.
The book advocates starting the diet with a 48 hour water fast which I really think should not be attemptd without medical supervision, and a dairy-free vegan diet. Worrying if you are on pred........we need that calcium.

I'm not judgemental or overly cynical .I try to adopt a 'whatever gets you through the night' approach, but I do resent the false hope given by these huge claims of cures.

Just my opinion for what its worth..................This site has over 22,000 members...if anyone of them has been cured by this book I will be very happy to stand corrected.