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help, my reg GP has retired due to med reasons the persons that have taken over her paintce. well i've seen them twice and was treated so badly left in tears and more depressed ( i've got wittnesses to their treatment ) problem
they are the only ones in the area that take cronicaly ill people on medicare
they're upset because i've asked questions & asked for copies of my test results(i keep copies of all test so if i go to emergency they have a base line
to go by & list of meds it all in a binder) any way she is now questioning me if i even have lupus treating me like i'm faking it all. she asked how did i know
that it was lupus i showed her my first 2 lab reports when they diagnosed me
she said that ana test means nothing, make things worse the x-ray on my right hand showed nothing so there is no reason for pain i'm having in it.
i mentioned to her that 2 different doc in california and social security said
that i have it.(it took me only 1 try with social security not the useual 3 trys) she then talked to me about my recient foot surgery (different doc did it ) i told her that they werent able to get the bone spurs but took care of the tendons & stuff , she then drew me a picture of how the bones of the feet are angled that they aren't spurs,but i told her that it was her office that orderd the x-rays & told me quote I had 2 big honking bone spurs
that shut her up. but when she did my pap-smer she was very hurtfull.
i guess i should have known it was going to be bad when in the begining of the visit i was haveing a flar up in a wheelchair, she snapped at me about
how i'd have wiegh myself cause she couldn't get around the chiar.
they didn't take my temp or bloodpressure( i have highblood pressure/diabeties/sle ) i let them know i had a mini stroke last week
i've had 2 prire in the last 6 months. my old gp was knew about these explained to me when to panic about them. I live 35 miles from the nearest
hospital. any way no matter how i've tried this has got me in a deep funk
one i feel like i'm going crazy, she has ordered different blood labs,
part of me is what if she's right what if it isn't sle, the fear of haveing to gothrough another 8 years of trying to figure out what is wrong with me .
then i tell myself that crap all of the symptoms piont to sle right. i dont think i'm strong enough to go through people telling me it's all in my head again
they did all those other test before cushings, thyroid,.
i was diagnosed sle before diabeties. i cant take it any more
sorry
 

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New brooms?

Hi Mum of Two
I've been reading your posts since when I started last year, and have always enjoyed them thanks.

So sorry that things have changed in the practice to your detriment. Like you, we are so vulnerable when some want to bully us, and try to change an accepted d/x. Like you now, I don't have a G.P. who knows anything about lupus/connective tissue, and I have had to go away from my city to see any specialists, who sometimes will not even allow me to ask a question, but slowly with the knowledge we gain from this site and others, we can question d/x and push for our rights.
All the best
 

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I am sorry you are having such a hard time with this new doc - can you just go around her and use your rheumie for you lupus instead ? Life without a good gp can be miserable for someone with a chronic disease like illness.

Didn't someone around here used to have a pointy stick for doctors like this one ?

Sorry to hear about the TIA last week - hope you are feeling better real soon.

cheers

raglet
 

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Hello Mom of two,
I am so sorry to hear of this awful change for you. It is shattering when you lose a good Doc. It is amazing how many Docs want to challenge a Lupus diagnosis even when it has been made by someone much more senior than them. It does happen in the UK too.

You must feel powerless at the moment.
X Lola
 

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Hi Mom of Two,

I am so sorry that you had to go through this.:mad::mad::mad:

I agree with Lolo that it is amazing how some doctors question a dx of Lupus when that dx was made by a doctor much more qualified then they are....it is maddening!!!:eek::eek::eek:

I am also on Medicare too..............there is not another doctor you can see?

I hope this works out for you. Maybe you should think about seeing someone else if even in the same practice.

Good luck to you.:wink2:
 
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