[Gerri54]

Was to see my doctor hoping to finally get results. What a joke!!!!!!!

I have elevate liver enzymes.
CRP elevated
ESR elevated
Kidney stone right kidney
Bladder problems (severe fluid retention, fluid hesitation)
Bruises on my arms that just pop out
Skin rashes
Hands and faces visibly swollen
Cholesterol out of whack
GERD inflamation seen, through biopsy
Now on Gluten Free diet
Have IBS diagnosed again by GASTRO

Family doctor tells me I am in no pain!!!!!!! - No chance to tell him where I am paining

Told me to go home loose weight - I eat barely 900 calories a day. I exercise as much as I can, when I am not in pain, and so not to cause more pain. He wants me to get my cholesterol down, and gives me a sheet of foods I am to eat, and three guarters I can't eat because of allergies. ;(

No referral to Urologist - No referral to Encrinologist - no referral to new Rheumy - No new prescriptions because I wasn't sure how much I had.

Just before left he said, he didn't need to see me until after January.

This is absolutely driving me crazy. I am so upset I don't know anymore what to do.

Pain

1- wrist burning
2- ankles burning
3- left arm I can barely lift it because of pain
4- jaw pain
5- lower back, upper back neck area
6- right and left rib pain - only to touch
7- GERDS
8- everything I eat causes pain
9- knee pain
10- hands

I am not going on. I don't care anymore.

Hugs

Gerri

 

[greenhaggis]

Gerri,

I so sorry to hear visit went so badly - can you see another doctor, that might be the best option all round.

What do you mean by 'I am not going on. I don't care anymore' - hope things have not got so bad that you want to end your life!!!

You have me worried and I hope that you are okay>

We all feel very low at times, but nothing is worth those feelings.

Myself plus others on this site will help and support you as much as we can, so please let us know what advice and support we can lend you!

Lots of hugs!

Lesley

 

[Viridian]

Wow! This is the type of doctors who give others a bad name!
I cant say anything more than ditch him and get a new one. If a new one isn't available to you, go into casualty/emergency.
This isn't fair on you at all. And I bet there are others he has upset. Can you write, and complain about him?
I'm so sorry and remember there are plenty of people here to help.
:hug::there::love2::flowery::foryou:

 

[KarolH]

Gerri,

Please check back here and let us know your ok.

I am sorry for all that your dealing with.

It is frustrating and just not fair.

Why doesn't your pcp get involved in this and why don't you go see other doctors who may listen?

Please check back in because NOW I AM WORRIED TOO.:worried::worried::worried:

 

[lazylegs]

Hi Gerri,

It is definitely time to get another opinion. You deserve better care. It is absurd for him to say you are in no pain, he isn't in your body. Don't give up get even, take your money elsewhere. Try posting in the "Find a doctor" section to see if anyone has a good doctor in your area. If not contact the nearest Lupus chapter to see if they have any recommendations.

Exercise is difficult to do when you are in pain. You will have to experiment with what works for you. The easiest exercise for me is walking. I found it has more benefits than I expected. Not only do I burn calories, my muscles are stronger and I come home in a much better frame of mind. While I walk I concentrate on my surroundings and let all my worries evaporate.

Since you have so many dietary restrictions I suggest you work with a nutritionist. A nutritionist would be able to help you make healthy substitutions for the foods the doctor wants eliminated from your diet.

Many of us have felt like hypochondriacs or thought we were going crazy before getting a diagnosis. Only by persevering did we get a diagnosis. I recommend you keep trying. If it gets too much for you mentally you might want to seek some professional help. In the meantime we are here for you.

Take care,
Lazylegs

 

[Gerri54]

Hi Lesley, Viridian, LazyLegs, and my dear friend Karol

I am still quick to tears but I am taking one day at a time.

All I ever wanted from my doctor is to give me answers. Each new test brings new added problems. I am just so very tired.

I see a naturalpath, who is also a Md in January, whom I hope will be able help me.

Last nutritionist who looked at my diet restrictions, said she couldn't do a better job than I. Any food I put into my mouth, puts weight, causes bloating, swelling, asthma attack, DH (watery sores) in my ears, or stops me breathing at night (which is registered on my CPAP).

Karol, I went to urgent care before, the celiac biopsy, the doctor there said if he was my doctor who would have already labelled me with celiac, instead of Gluten Intolerant, which I now labelled with.

So many people in the last day have told me to dump this doctor (I so believe that is what he wants.) If it wasn't so hard to find another doctor here in Canada, I would do just that. Getting my prescription Ativan, is really what is stopping me now from dumping him. Only your family doctor can prescribe this medication.

Hugs

Gerri

 

[Katharine]

Hi Gerri,

I'm so sorry but I'm going to agree with the others. It is high time you found some way to get another family doctor. Without backing on that front you are not going to get far, and YES, you do need to keep insisting and pushing. You deserve a better quality of life than you have and, at the end of the day,it should be part of your doctor's job to help you get it.

He needs "firing" by you! Please do everything you can to see someone else. Maybe even someone else at the same practice (if it is a practice). Sometimes having a quiet word with the practice manager/secretary can do wonders.

hugs
:grouphug2:

Katharine

 

[LolaLola]

Dear Gerri, Please try to have a peaceful weekend and get back some fighting spirit. None of us can fight all the time. Take a break then resolve to get the care you deserve. Many of us have had to get rid of at least one Doctor, often more.

Please keep checking in so we know you are okay emotionally. (You are clearly not well physically whatever this Doc. thinks)
x Lola

 

[Gerri54]

Katharine, even though you don't realize it you made me chuckle, and very much thank you for that.

Now I explain - "having a quiet word with the practice manager/secretary can do wonders" I honestly don't think it will work because his manager/secretary is his wife. This is so much more different from any other doctor's office I have been to. Family and friends operate as secretary and nurses when your having a physical.

Good suggestion however

Hugs

Gerri

 

[Gerri54]

Lola, thanks to friend like everyone here, my weekend is getting better by the minute. Thanks

Hugs

Gerri

 

[karenj7777]

Dear Gerri,
Sorry to hear of your troubles. We are all "here" for you and on your side.
And it does sound like time to dump this one, even though starting fresh is so difficult focus on the "fresh" part and finding someone who will be kind. Along the way this doctor has done something to help and now it is time to find the next person who will aid you and serve you better. Try to relax and realize we have all encountered this --most anyway! And what has been done to you will come back to bite ....you know. The weight gain could be kidneys or mostly water from a variety of things it will be better. Watch a funny movie and vent here if you need. There are good times ahead and you will get a better doctor.
Hugs,
Karen:hehe:

 

[KarolH]

Good to see you posting Gerri.

Keep your chin up.

 

[marydoll]

it really is frustrating

Hi Gerri and all the other good folk on this site.
I feel for you Gerri... im in a similar position. However im not going to give up and will continue to push the doctors until they find out what is wrong. I have felt like giving up the fight many times. Guess we can get pretty negative when feeling so ill and getting nowhere fast.
The last rheumy I saw said my blood tests were inconclusive for lupus but my recent bloodwork is finally showing signs of autoimmune disease(according to my family doc) and he spoke to the rheumy. As a result of these bloods and worsening symptoms Im going to be referred back to the rheumy. Dont know what all showed up in blood as doc didnt say except that i have an inflamed liver(i dont drink alcohol) and that i had other abnormal bloods. i had a liver scan yesterday and have something wrong with the bile duct.
Gerri i will be thinking of you and hope you feel better soon.
At least we have support on this smashing site.

love
mary

 

[onetay]

Hi Gerri54,
I am sorry that you are having so many problems. I am also sorry you seem to have a bad doctor. You have the right to a second doctor look at you. You know your body better than anyone and know you have pain, where it is, how often you have it, and what you can't do any more or causes more pain. You have to stand up for your care and keep on telling the doctors. Some of your already known problems might be responsible for some of what you listed but no way near most of them. I would seek the advice of another doctor as soon as possible. I wish you the best and hope things work out well for you.
Tammy

 

[Gerri54]

Karen,

You said weight gain coould be from the kidneys - it's funny two things - both my kidneys on left and right side at my kidneys are sore. I thought it could also be my ribs, but it feels more where the kidneys are. The dr. informed me I also have a Kidney stone on my right kidney, of which he is doing nothing about. The dr. did want me to go for surgery to stretch the opening to the bladder. My last urologist did not recommend it.

I was hoping he would at least refer me to urologist but he didn't. I thought urologist might suggest other options but dr. not making the referral.

Hugs

Gerri

 

[Gerri54]

Karol, my dear friend I am still here still posting, and still close to tears. Friends are saying dump this doctor, but can't right now, as I have no other doctor I can get scripts for one medicine I am taking.

I so don't like this doctor, he stresses me out so much.

I am taking one day at a time.

Today I am loosing my voice. My eyes were nearly swollen shut. My wrists and hands are also swollen. They are also falling asleep as I type.

I don't know

I am here not going to do anything silly. I need to be here to bug my friends.

Hugs

Gerri

 

[Gerri54]

Tammy, it's so hard with my Central processing disorder to talk to people, and explain my problems. As there are next to NO drs. here in Ontario Canada, there will not be another dr for me in the near future.

My voice is disapearing, and wrist are falling asleep as I type, I think my body just doesn't like me.

Hugs

Gerri

 

[Katharine]

:rotfl: hahaha Gerri, then, yes, I agree it won't work!! But, you do get my point!!

Katharine

 

[Gerri54]

Hi Mary, I left you to the last to type to.

"The last rheumy I saw said my blood tests were inconclusive for lupus but my recent bloodwork is finally showing signs of autoimmune disease(according to my family doc) and he spoke to the rheumy. As a result of these bloods and worsening symptoms Im going to be referred back to the rheumy. Dont know what all showed up in blood as doc didnt say except that i have an inflamed liver(i dont drink alcohol) and that i had other abnormal bloods. i had a liver scan yesterday and have something wrong with the bile duct. "

Mary, I also have an inflamed liver. The diseae is called NASH (non - alcohol fatty liver disease with inflamation - I don't drink either). They are trying to say my weight problem is causing my liver problems, but I was underweight when I started with the liver problems. Do not take naicin a 'B' vitamin - very bad - as it will cause you lots of pain. Can even be found in "hamburger helpers" a pasta dinner, which I don't touch anymore because of being gluten intolerant. Stay away from any medication that will cause further damage to your liver.

People with Lupus have been know to have liver problems, and thyroid problems. I thought I would be a shoe in because Lupus does run in my family, and I have many symptoms. I guess I will have to wait for the diagnoses.

Hugs

Gerri

 

[sozzy2]

Hi Gerri,

I'm so sorry about all your pains, and your doctor, who is horrible. You do deserve better. Much better.

I had celiac disease about 10 years before I got the diagnosis and went on the GF diet. If the disease has been active for a while in you, and it sounds like it has, the damage can reach all the way to the esophagus, and that would explain the GERD. My gastro said the digestive system would take about a year for all the damage to heal, and his prediction came true. The inflammation in your stomach and esophagus could be partially relieved by the OTC (in the US) drug Prilosec. If you also have the wheat allergy, which can occur with celiac, though it is not at all related, being gluten-free might help with the rashes. But the harsh truth is that everything you eat will hurt for a long while.

My nutritionist said that the GF diet would take also about a year to get right, and that was true too. It's easier now, there's more packaged GF food available, but most of it is snacks, not really what you need right now. The best advice she gave me was to make sure I got enough fiber and acidolphilus. I don't like yoghurt, so I took acidolpilus in capsules. Beans are a good form of fiber, but not everybody tolerates them well. Oats are a great source of fiber and now known NOT to have gluten. You can get certified GF oats or oat bran, which make a nice soothing warm cereal.

The thing that helped me with exercise was a DVD that taught yoga for weight loss, and had 4 different women demonstrators, including a nice chunky one who was a beginner. She was my model! I did get started losing weight and feeling better with that program. Then I started walking too.

Can you tell this doctor that if he doesn't want you as a patient you will leave his practice as soon as he helps you find a better doctor?

Good luck! Doctors are like frongs and princes (except you don't have to kiss them).