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This makes me wonder about my 20 yr. old daughter. She has an under active thyroid dx'ed a few months ago...not bad enough apparently for medication. She had the radio active scan done and it came back fine.

My question is does she need a seperate test to determine if her problems are autoimmune? She has been losing tons of hair..luckily she has really thick hair so it doesn't show except for a bald patch on the side of her forehead. Also she has a pretty big sore on the inside of her lower lip next to the gums. She used to get the same kind of sores on the roof of her mouth along with fatigue and occasional aches and pains. Just wondering if she needs to be tested further. I want her to go while the sore and bald patch is there but she just brushes it off.
 

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If I were her mother, I'd probably want some more testing done to make sure there isn't anything else going on that is autoimmune. Especially if she continues to fairly regularly get those joint pain and fatigue problems combined with the other symptoms you mentioned. In the related conditions forum, there has recently been a discussion on thyroid conditions and the tests that are often missed in diagnosing when it is due to autoimmune antibodies.

She does seem to have enough symptoms to warrant further testing... but since she's 20 she will have to make that decision herself I guess.
 

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Hello Mary

If the thyroid is autoimmune there would be thyroid autoantibodies. If she had hypothyroid symptoms I wonder why they aren't treating it. I know that many people aren't treated but experience vast improvement in their health when they are. Of course that is for their doctors.
As far as I know some of the other symptoms you mention aren't likely to be due to thyroid such as the mouth ulcers.
Although Hashimoto's hypothyroid is an autoimmune disease, it is not a connective tissue autoimmune disease like lupus so there are a number of lupus different from those for thyroid. The ANA antibodies might be present although low titre and not diagnostic for thyroid as they are for lupus.

I am sure it would make sense for her to get checked out for lupus but with a young adult daughter myself, I know how hard it can be to persuade them of anything!

Lots of Luck
Clare
 

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Hi Mary. My 14yo dd has Hashimoto's (underactive thyroid). Don't let the doctors brush you off - I'm assuming your daughter's hypothyroid was determined by a TSH test. Which is a fairly lousy test if the reason the thyroid is underactive is autoimmune. Therefore she needs to have her thyroid abs tested along with FT3 and FT4.

I noticed my daughter's hair loss, hyperpigmentation on her throat/chest, heel pain, irritability, sore throat, dizzy in morning etc and had her tested for Hashimoto's. The doctor humoured me....I'm sure he didn't expect anything to come of it. So when I went back and said I think she's got Lupus as well, he tested her without questioning.

Happily the thyroid specialist she saw said she would treat her if her TSH was above 2.5. If they have antibodies and they don't get treated then things are just going to get worse. Best to get onto it asap.

Many doctors go by the lab ranges and some lab ranges are so outdated that their range could go up as far as 5.0. This is what happened to me and they made me suffer for years.

I would recommend you ask for a copy of any lab tests and keep your own file. Very important to do this.

...Julia
 

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Hello,

I don't have much really to add to the above advice. Really just add a voice of agreement.

As already mentioned the lab ranges for TSH are outdated. My endocrinologist wants my TSH under 2 and if it goes anywhere above that I feel much worse. My TSH is even slightly "hyper" right now but it's that or above two so the docs choose to keep it there.

My mother has suffered unecessarily all her life because her GP can't see further than those lab ranges and will only keep her TSH under 5. It makes me angry as she has plenty of other things to deal with without that on top.

For the thyroid question she should be having other tests done to determine if it is autoimmune. She should also be getting treatment even if she doesn't need much. It could change so much in her life and it is one of the things that is easily treated.

As for the other symptoms, yes, they do need checking out. For years docs put those same symptoms down to thyroid for me and I knew something else was going on. My endocrinologist did say that those symptoms could be caused by the thyroid problem but when they continued despite my thyroid being within range he sent me to the rheumatologist for further investigation.

Katharine
 
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