Joined
·
2 Posts
Hi My name is Alma Calleros I am new I was diagnosed with lupus 6 years ago only because I ended up in the hospital with pericarditis I had strange syptoms since I was in elementary but they always came and went. At the age of 38 I almost lost a brother with an aneurysm and three months later my oldest brother died of heart attack . I became so depressed that I lost 20 lbs in less then a week I thought because of the stress . I later started with pain in my joint where I couldn't extend my arms. I then ended up with a pain in my back that would not let me breath I continued to go to the doctors for three weeks because the pain would not go away finally One day the pain just got the best of me and wouldn't go away with any pain killers I was rushed to the hospital only to be questioned as to which drugs was I on because my heart rate was so high . I cryed because I had never done drugs so why should this dctor accuse me. Finally after being in the hospital for 8 days I was told that it seem as if I might have lupus. I was sent home and referred to a ruemotrologist . He immediately confirmed that I have lupus SLE. I then found a wonderful special person Dr. Oreggio whom explained the disease. I have been in and out of the hospital . I have started to finally learn that I must rest alot in order to keep my sanity I listen to music and volunteer my time to schools when I am not sleeping . I have been diagnosed with all of the following Lupus,fibromyalgia,Rynauds,thyroid,hypertension,sclederma,pulmonary hypertension, endrometriosis, Fibroids in my lungs,I continously have a chronic cough.chronic fatigue. But believe it I thank God for this disease because this gave me the opportunity to come out of my working space to spend more time with my now 17 year old son, to attend to those students that dont have a parent to support them . I really believe that if I am still alive today after being in a critical state in CCU 6 years ago. God had a pupose for me and my journey was not over it actually had just begun. At the beginning it was all a bad dream. But now the sun has risen I have a lot to do . I have meet many new and exciting people along the way. I enjoyed dancing and that was my biggest fear of not being able to do so with out being so exhausted . I now just dance one dance at a time. I am blessed with each additional day given and even though I have some tough days I try to think positive and say I can and will get up today and try. Thank you for listening to me vent. I know you may understand me because some of my friends and family don't Therefore I try to always be that happy going person that they all knew even in those hard days . I must be in a hospital bed for them to know Im sick because when I am out pain and all out I seem as nothing is wrong. [email protected]:wink2:
