I came on this site in 2005 suspecting i had lupus, i just barely got diagnosed with a world of suffering for 3 years. My brain hurts and my kidneys have given me a lot of trouble. Glad i got back here!
I'm sorry to hear that you have suffered so much but glad that you finally have a diagnosis. Hopefully that will lead to better treatment and a better understanding of what's going on with you from docs.