It is 6am here, I have tossed and turned in bed for hours and finally got up instead of continuing to both my poor husband. Today is going to be a very long day for me, probably the longest in my entire 49 years.
I have a beautiful little 9 year old granddaughter, she is my heart beat. Today at 6 am Texas time they will be wheeling her into the operating room once again.
Sierra was born with little to no platelets in her little body. She had also suffered a brain bleed while inside her mommy. No my daughter did not do drugs or drink or smoke. We thought she had done everything perfect for a healthy baby.
Well Sierra surprised us all, mostly the medical staff at OKC Children's hospital when she fought to stay alive. Not only did she survive she managed to re-route her brain. She learned to walk, which even with a bad limp she did this. She learned to talk, maybe not to the best to be a public speaker. She showed me what being strong and a fighter was.
This pass summer she went through a 12 hour, 7 different surgeries on her legs to correct the limp and the damage done to her other leg from the limp. The very next day she amazed the doctors at the LA Shriners hospital by getting up and walking pretty as you please with a walker and two full leg cast.
The surgery today is to hopefully stop her many seizures, she has an average of 35 to 45 a week. The doctors at Cook's Children Hospital are worried she will lose her ability to speak because of the section they are having to remove to control these siezures.
Her biggest concern is she will not have long red hair like Nana for awhile.
Her words to me last night on the phone was, Nana I love you and I will be ok please do not worry about me, I do not want you to be sick because of me.
It is killing me not being there but my doctor is not allowing me to travel to Texas, I live in South Carolina, he says it is too soon after my ICU stay and my kidneys failing. So I sit here feeling so alone and so afraid.
So I am asking you all please pretty please say a pray for my beautiful Sierra.
I have a beautiful little 9 year old granddaughter, she is my heart beat. Today at 6 am Texas time they will be wheeling her into the operating room once again.
Sierra was born with little to no platelets in her little body. She had also suffered a brain bleed while inside her mommy. No my daughter did not do drugs or drink or smoke. We thought she had done everything perfect for a healthy baby.
Well Sierra surprised us all, mostly the medical staff at OKC Children's hospital when she fought to stay alive. Not only did she survive she managed to re-route her brain. She learned to walk, which even with a bad limp she did this. She learned to talk, maybe not to the best to be a public speaker. She showed me what being strong and a fighter was.
This pass summer she went through a 12 hour, 7 different surgeries on her legs to correct the limp and the damage done to her other leg from the limp. The very next day she amazed the doctors at the LA Shriners hospital by getting up and walking pretty as you please with a walker and two full leg cast.
The surgery today is to hopefully stop her many seizures, she has an average of 35 to 45 a week. The doctors at Cook's Children Hospital are worried she will lose her ability to speak because of the section they are having to remove to control these siezures.
Her biggest concern is she will not have long red hair like Nana for awhile.
Her words to me last night on the phone was, Nana I love you and I will be ok please do not worry about me, I do not want you to be sick because of me.
It is killing me not being there but my doctor is not allowing me to travel to Texas, I live in South Carolina, he says it is too soon after my ICU stay and my kidneys failing. So I sit here feeling so alone and so afraid.
So I am asking you all please pretty please say a pray for my beautiful Sierra.
! Wow, what an inspiration she must be to so many people. I am praying for Sierra, you and your family. Please let us know how she is doing when you can. (((((()))))))'s and warm wishes.
