Hi,
I have just been diagnosed with lupus although i've had anti cardiolipin antibodies for years which is being treated with clexane.
The Dr said there was no treatement safe in pregnancy so to just wait until after the birth ( I am only 12 weeks now).
However I am really having problems at the moment. I am getting fevers so high i soak through my pj's and the bedding, have to change sheets etc almost every night, joints are so bad i have resorted to crawling at times rather then trying to walk in the morning, and my kidneys are killing me. I've also fallen down stairs 2x.
I have broken several bones in the past and the doctors were always amazed at my ability to move broken bones, even walk on them, but this is far worse then just breaking a few bones. I am having severe anemia problems and some pain breathing. My kidneys hurt as well and i am basically miserable. i have a son almost 3 as well so this is really making it difficult to get by.
Is this the norm to avoid treatment in pg or can anything be done safely - btw i thought high fevers could be dangerous in pg too?
Also does anything really help with the joints after pg? I am so hoping I can get back to normal after this. Have had very bad flares on and off for 3 1/2 years now.
I have just been diagnosed with lupus although i've had anti cardiolipin antibodies for years which is being treated with clexane.
The Dr said there was no treatement safe in pregnancy so to just wait until after the birth ( I am only 12 weeks now).
However I am really having problems at the moment. I am getting fevers so high i soak through my pj's and the bedding, have to change sheets etc almost every night, joints are so bad i have resorted to crawling at times rather then trying to walk in the morning, and my kidneys are killing me. I've also fallen down stairs 2x.
I have broken several bones in the past and the doctors were always amazed at my ability to move broken bones, even walk on them, but this is far worse then just breaking a few bones. I am having severe anemia problems and some pain breathing. My kidneys hurt as well and i am basically miserable. i have a son almost 3 as well so this is really making it difficult to get by.
Is this the norm to avoid treatment in pg or can anything be done safely - btw i thought high fevers could be dangerous in pg too?
Also does anything really help with the joints after pg? I am so hoping I can get back to normal after this. Have had very bad flares on and off for 3 1/2 years now.