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Discussion Starter · #1 ·
Hi, I have been a member of the site for a while, and visit now and then to have a browse. I was dx with fibromyalgia 4 yrs ago. I new that there was something else, i would come up in a rash after exposure to the sun. A little while ago i was diagnosed with DLE by my dermy, and then my rheumy diagnosed me with SLE. Last week i had an appointment with my rheumy, and have now been diagnosed with APS also. ( i think this may be why my daughter was born prem(she is now 17 months, and healthy as anything), before trying for a baby i asked if it was possible that i had lupus, because some of the things that are associated with it could cause problems. I was told that i definitely did not have lupus).
I am surprisingly well most of the time, and the plaquenil and other drugs are working well, however, at night when it is time for bed i have restless legs, and no matter how i lie, the part of the body i am lying on aches.
Does anyone have any suggestions how to deal with restless legs? .
Or maybe some advice on how to get a good nights sleep, as these are few and far between.
I would like to thankyou for taking the time to read this.
Mandy.
 

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Hello Mandy,
Amitriptylene or Nortriptylene can be a good help in aiding muscle relaxation and good sleep. I don't know if you have tried either of these. They were originally anti depressants but for what you need are taken in MUCH smaller doses.
Hope this may help you.
x Lola
 

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Hi Mandy,

Restless legs can drive you nuts when you are trying to sleep. My rheumy prescribed Mirapex for me. It take a really low dosage so I don't have problems waking up the next morning.

There are also home remedies you might try. One is a bar of soap at the foot of you bed. I don't know why, but it seems to help some people. It is also recommended to decrease your caffeine intake. If I start having problems before it is time to take my medication I try some light exercise or a heating pad. My mom does just the opposite and uses cold packs. I hope you find something that works for you.

Take care,
Lazylegs
 

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I'll prolly get in trouble for posting this.. but a little tiny bit of whiskey helps me sleep some nights. Not enough to get drunk or affect my meds, but just a couple sips to help me relax does wonders. Also, sometimes sleeping in the nude helps me too. I just have to make sure the covers are piled around me so I dont freeze!

Hope you get a good nights sleep soon!
 

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I find amitriptylene sends me to sleep and helps restless legs and I usually listen to the radio to stop my mind wandering. I hope you find something that helps.
 

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Discussion Starter · #6 ·
Thanks all for your replies. Havent been on for a while, husband has new job and has to work away a lot. I have 3 kids and it is hard work doing everything that needs doing. Am exhausted by end of the day. I will try a few ideas at home and if no relief will see gp about prescribing something. Thanks again for all your replies. This site is a godsend.
 

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Welcome Mandy,
I don't routinely battle restless legs, but on the odd night that I do have it, I find 1/2 of a xanax added in with my regular meds helps to calm them down.

I also find that using 4" of foam/eggcrate/memory foam pads on top of my mattress helps to relieve pressure points and lets me sleep. If I go somewhere where they may not have them, I take my own 3" pad that I use on a camp cot. Otherwise, I have major trouble sleeping on a flat bed mattress. I also use additional pillows to keep me upright enough to avoid asthma problems.
Sally
 

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please please tell me when you find out.......... ive been like this for monthsssssssssssssss!!

Lin xx
 
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