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39 Posts
Well, I got the "official" word today at my follow-up. I have Undifferentiated Connective Tissue Disease. And psoriasis. And Hashimoto's. And fibromyalgia. Possibly Irritable Bowel Sydrome (is that autoimmune by the way?). I am in the process of getting a referral to a dermatologist and a nephrologist (kidney doc). He says that I have less than a 10% chance of this progressing to lupus, so I guess that's good. He told me that UCTD was a lot better diagnosis than a lupus one, though from what I've read on here and on the 'net, they seem to be one and the same just about. He then said that UCTD doesn't progress like lupus does/can, so that's why it's better.
He put me on Neurontin (sp?) for the fibro as the cyclobenzaprine wasn't working and Plaquenil for the UCTD. He is hoping that the Plaquenil will make the fluid around my heart and lungs go away.
In another post I mentioned that I was a bit worried about how my mom would react to this (thinking she was going to blow it off or whatever), but she really surprised me and actually believed everything I told her. She said she was glad that I was going to be put on the medication so that I could get better and I told her that this condition doesn't go away, even on medications. That got an "Oh........." out of her.
Hopefully I won't have too many (or better yet, no) problems with the medications!!!
He put me on Neurontin (sp?) for the fibro as the cyclobenzaprine wasn't working and Plaquenil for the UCTD. He is hoping that the Plaquenil will make the fluid around my heart and lungs go away.
In another post I mentioned that I was a bit worried about how my mom would react to this (thinking she was going to blow it off or whatever), but she really surprised me and actually believed everything I told her. She said she was glad that I was going to be put on the medication so that I could get better and I told her that this condition doesn't go away, even on medications. That got an "Oh........." out of her.
Hopefully I won't have too many (or better yet, no) problems with the medications!!!