Hi Folks,
Just found this article which I'll copy out in case the link disappears.
New Immune Disorder Charity Launched
A new charity for people affected by immune, auto immune and chronic disorders was launched.
The Butterfly Group will support and care for those affected by these disorders.
The charity's head office will specialise in more than 100 illnesses, symptoms and related disorders.
It will be the only charity in the UK that supports and cares for these illnesses as a collective group of disorders under the hats of "immune and auto immune" disorders.
The charity's founder and manager is Christina Lukacs, 39, who suffers from one of these conditions, systemic lupus erythematosus, in which patients have thick bood which can cause potentially fatal blockage of arteries.
Christina's condition once caused her to suffer a heart attack at the wheel of her car and she crashed into a parked vehicle.
She was lucky to survive and now says: "After being diagnosed with a serious form of one of the auto immune illnesses, I realised how difficult the illnesses were to live with and the lack of awareness of the general public."
The president and trustee of the charity is Dr Ramesh Gandhi OBE, a Wyre councillor representing Staina ward, who said: "The Butterfly Group will help provide information and support for people suffering from conditions that little is known about.
"They include forms of anaemia, rheumatic arthritis, nephritis, systemic lupus erythematosus, myasthenia gravis, Sjögren's syndrome and various types of thyroid disfunctions."
Although its head office will be in Blackpool, the charity will also support sufferers in Fleetwood and Wyre, as well as the South Fylde area.
For more details, contact Christina Lukacs on (01253) 347782 or e-mail [email protected].
http://www.fleetwoodtoday.co.uk/poulton/New-immune-disorder-charity-launched.4209972.jp
Hugz,
Pam xxx
Just found this article which I'll copy out in case the link disappears.
New Immune Disorder Charity Launched
A new charity for people affected by immune, auto immune and chronic disorders was launched.
The Butterfly Group will support and care for those affected by these disorders.
The charity's head office will specialise in more than 100 illnesses, symptoms and related disorders.
It will be the only charity in the UK that supports and cares for these illnesses as a collective group of disorders under the hats of "immune and auto immune" disorders.
The charity's founder and manager is Christina Lukacs, 39, who suffers from one of these conditions, systemic lupus erythematosus, in which patients have thick bood which can cause potentially fatal blockage of arteries.
Christina's condition once caused her to suffer a heart attack at the wheel of her car and she crashed into a parked vehicle.
She was lucky to survive and now says: "After being diagnosed with a serious form of one of the auto immune illnesses, I realised how difficult the illnesses were to live with and the lack of awareness of the general public."
The president and trustee of the charity is Dr Ramesh Gandhi OBE, a Wyre councillor representing Staina ward, who said: "The Butterfly Group will help provide information and support for people suffering from conditions that little is known about.
"They include forms of anaemia, rheumatic arthritis, nephritis, systemic lupus erythematosus, myasthenia gravis, Sjögren's syndrome and various types of thyroid disfunctions."
Although its head office will be in Blackpool, the charity will also support sufferers in Fleetwood and Wyre, as well as the South Fylde area.
For more details, contact Christina Lukacs on (01253) 347782 or e-mail [email protected].
http://www.fleetwoodtoday.co.uk/poulton/New-immune-disorder-charity-launched.4209972.jp
Hugz,
Pam xxx