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Unbelievable sun sensitivity or something else?

299 Views 8 Replies 7 Participants Last post by  cad
Hi All,
I have a diagnosis of MCTD and am taking plaq, metho and intermitant pred but am not taking it now. I don't usually post threads to often but this isuue has got me wondering and wanted to hear for others who may have some knowledge abut this.

I do have the lupus malar rash andit is photosensitive, but generally as I am not out and about much at the moment and when I am use protective make up it has not badly flared up for a few months although I my inflammatory markers have been high and I my illness is still not quite stable. I am aware from reading the side effects of metho that it can cause increased sensitivity to the sun.

It was quite sunny over the weekend, I did not go out any where except to the washing line and probably spent about 10-15 mins in the garden altogether. Shortly after I came in my ras really came up and I had the warm burning that occurs and then the rash raised up, the skin has now becme dry and slightly scaled. We then had a couple of days of rainy and cloudy whether and although the skin stayed dry and was scaled slightly I would say it was not really flared up. Then todya more sun and the rash up again.

Is it possible to become this hypersensitive from the metho and is it possible that I am going to have where sunblock even when in the house. Or is it more likely that this is coincidence and just the result of a flare.
This really has come as quite a surprise to me. I have not yet sort advice from the gp as I have not felt this is an urgent health concern. Obviously I will seek advice, just wanted to get some info here first.

Take Care All

Cassie :)
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Hi, I too am on the same medications as you. I have SLE. I use to live in Florida but 8 years ago I moved to England. I love the sun, I use to be able to sit in it all day long while living in Florida however, I often got funny rashes and very itchy with welts but I put it down to just a sun rash or heat rash, too much chlorine in my pool and so on. Once I moved to England I was put on just Plaquenil. The sun sensitivity went away believe it or not. Then I was put on Methotrexate and I must say I have never had so many problems with the sun. I can’t even go out in it as it causes sores, dry, scaly skin, sun burn and the burning sensation can’t be described and it feels as if someone is burning me with a lighter. Since I lived in Florida for 10 years I have a permanent tan. You can see my white bits as they glow in the dark. Although I have had SLE for 13 or so years the sun never really bothered me nor did it cause flares. Since being on the Methotrexate I can’t go out in it otherwise I suffer with sores, pain and bad sunburn. I have put it down to the Methotrexate because that is the only new medication I was on when this happened. In my opinion, yes, Methotrexate causes more sun sensitivity then SLE itself. It may not be the case in everyone but it sure is with me! I hope you get to the bottom of it all!

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