[Vikkikent]

Hi
I am new to this site and not even sure I am posting this message correctly. Here's hoping it reaches you. I have had almost 4 years of testing with a mis-diagnosis of Multiple sclerosis and now still inconclusive. I have been diagnosed with a dew other ailments that tie in with Lupus but no positive test for Lupus itself. I have been prescribed Pregabalin by Lyrica off of my rheumatologist which for the first two months was relieving some of the symptoms which was great as the first two weeks of taking the drug made me feel so nauseous but eventually it became my best friend . However just acouple of months on and things are beginning to worsen again and just awaiting to see the next specialist !!!! Just hang in there I know its hard but you have to have some faith that someone along the path will show some positivity and understanding. I have been told that unless my body is in the missle of a flare that a positive ANA doesn't always show. I have seen so many different specialists all offering their knowledge and their kind words of help then a negative ANA turns them into people I hardly recognise. I have been to **** and back and still try to hang on in there. I have learnt not to have great expectations on any medical visit now and then I don't get too deflated. I always used to build myself up hoping that the next visit would be more positive...... now I just take it for what it is otherwise I end up so stressed and dis-illusioned that I make myself more ill. I truly do sympathise with you and hope you get some luck somewhere along the line. Sorry for rambling I just hope it makes sense and hopefully will make you feel better to know you are not the only one.............. not that it is any great consolation.
Kind Regards
Vikki kent

 

[cath]

HI Vikki,

Welcome to the forum. I moved your post to your own thread so that it would be more easily noticed. That way you'll get more replies addesssed specially to you.


I'm sorry you are unwell and having difficulties with diagnosis. What other specialists do you see in adition to the rheumatologist? Diagnosis is/was for many of us a long frustrating process. What is your rhumatologist suggestingfor you in the mean time?

What are your symptoms? You wrote that some blood tests were suggestive of related diseases - what were they?

Diagnosis is like completing a jigsaw puzzel - sometimes it takes a while for the picture to become clear, especially if an important piece is missing (like the ANA). Still, hand in there, and if we can support you, good:blush:

X C X

 

[Katharine]

Hello Vikki and welcome,

I know where you're coming from. I am still ANA negative but was lucky to eventually get diagnosis. My journey was a long one too and that feeling of disappointment is so familiar. You end up wondering where to turn.

I don't have any additional advice to give but just wanted to welcome you here

Katharine