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Hi

I had some problems earlier this year which lead to a numb leg, a visit to hospital and some blood tests. My GP suggested i may have some indicators of Lupus and referred my then local hospital. When i talked this through with my GP, a lot of things fell into place. I get very tired and have always suffered with random joint pains. I do not like the sun and often get 'unwell' when abroad. I get spotty rashes on my feet and chest in particular when abroad.

When i met a rheumatologist in early October, she told me it was not lupus, but she did diagnose APS and put me on asprin. She did however do more tests to check and as i was moving house, advised i contact a new GP asap in Warwickshire which i did. The new GP did not seem to know what APS was, let alone Lupus. The new GP told me that it would blood problems are not dealt with by rheumatology!

I am now hesitant to go back to the doctor, for obvious reasons. However, i am getting more and more problems. I am still getting headaches and i am still extremely tired. I can manage to work through the week, but am usually early to bed - today is the latest i have stayed up in a while. I am still getting random joint pain and generally feel unwell all the time. I don't know if i should keep pushing this as it is simply upsetting and i regularly feel very low with all the worry - i can't explain it to anyone and i feel very alone.

Does anyone have any suggestions? - I don't know who else to talk to...
 

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Hi,

Welcome to the forum! I'm sorry you are feeling lost at the moment:(.

APS is one blood disorder that is in fact quite often handled by a rheumatologist. Some people also see a haematologist , or only see a haematologist. Did the GP refuse to refer you to a rheumatologist in your new area? Did he/she refer you to a haematologist then?

I think it is appropriate that you be under the care of a rheumatologist, especially as the rashes are not typical symptoms of APS, and may indicate you have a possibility of developing lupus too.

By which criteria was your APS diagnosed? Have you had clotting problems or pregnancy losses?

Whatever the case, you certainly have medical issues which need ongoing monitoring by both hospital specialists and a GP. If the GP you have now is not helpful, I'd try to switch GPs sooner rather than later - either by trying someone else in the same practice, or if you have to reregistering elsewhere. You are going to need medical care, so a dismissive GP is no use to you.

Hang in there and keep in touch:blush:

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