Hi everyone:
Last month I came to this forum exahusted after 2 yrs of suffering without a diagnosis. I shared my pain and my frustration. Some of you shared with me that you had been diagnosed with Lupus through a skin biopsy, and that other than that your blood work always came back normal.
I shared this with various rummys, but they said it was impossible to have a prefectly clean bloodwork as I did, and have Lupus at the same time. needless to say I didn't listen.
A few weeks ago I found a dermatologist that would biopsy my butterfly rash on my face. I just got my results today. POSITIVE FOR LUPUS!!!
I don't understand why doctors kept telling me that it was not possible to have Lupus with normal blood works, and why doctors are not going directly to skin biopsies when they can see all the markers on someone but can't get the positive results off the bloodwork. Why do they act like they don't know?
I will have an appointment with my dermatologist on Wednesday to go over my results more thoroughly and I guess begin some kind of treatment for my rashes. Which I have been lucky are not that bad.
My worst symptoms are physical, fatigue and pain, are my worst enemies.
Anyway, I don't know if to celebrate or cry.
I now have to process this and the realization of what I have to live with is just beginning to set in. I have known that I had Lupus for a year, but the absence of the diagnosis helped me to keep a doubt alive. I had not yet accepted it because I kept being told that it wasn't Lupus.
I hope that now that they know for sure what it is that I can get the right amount of treatment and at least have more good days than bad, as I do now.
Thank you all who shared your experiences with me to help me to do this and get to a diagnosis. I more grateful than I can express in words!
pammyd
Last month I came to this forum exahusted after 2 yrs of suffering without a diagnosis. I shared my pain and my frustration. Some of you shared with me that you had been diagnosed with Lupus through a skin biopsy, and that other than that your blood work always came back normal.
I shared this with various rummys, but they said it was impossible to have a prefectly clean bloodwork as I did, and have Lupus at the same time. needless to say I didn't listen.
A few weeks ago I found a dermatologist that would biopsy my butterfly rash on my face. I just got my results today. POSITIVE FOR LUPUS!!!
I don't understand why doctors kept telling me that it was not possible to have Lupus with normal blood works, and why doctors are not going directly to skin biopsies when they can see all the markers on someone but can't get the positive results off the bloodwork. Why do they act like they don't know?
I will have an appointment with my dermatologist on Wednesday to go over my results more thoroughly and I guess begin some kind of treatment for my rashes. Which I have been lucky are not that bad.
My worst symptoms are physical, fatigue and pain, are my worst enemies.
Anyway, I don't know if to celebrate or cry.
I now have to process this and the realization of what I have to live with is just beginning to set in. I have known that I had Lupus for a year, but the absence of the diagnosis helped me to keep a doubt alive. I had not yet accepted it because I kept being told that it wasn't Lupus.
I hope that now that they know for sure what it is that I can get the right amount of treatment and at least have more good days than bad, as I do now.
Thank you all who shared your experiences with me to help me to do this and get to a diagnosis. I more grateful than I can express in words!
pammyd