Well I will start by saying I am still in Limbo land.
As I have said before I was dx with Multiple Sclerosis in 2005 yet I have never accepted the dx and have always felt that the doctors were missing something big.
Well, I went to my Neurologist today for a follow up appointment for the MS. This Neuro doctor is great and for the last 6+ months he has worked with me re testing me and putting me through the gammett of testing for MS. Again, just as I expected nothing really points clearly to MS.
Here is where it gets interesting....................I gave him a copy of my most recent bloodwork that the Rheumatologist did and he looked it over very carefully.
He is now convinced that I do NOT HAVE MULTIPLE SCLEROSIS but instead either a Lupus or Mixed Connective Tissue disease along with a clearly positive Lyme disease diagnosis.
He recommended I see a Infectious disease doctor for the Lyme and he gave me a few names of guys he trusts. For Lupus/MCTD he said go see this Rheumatologist and he gave me the name of a guy he also trusts.
I told him about the Rheumy doctor I have been seeing and how he put me on Doxycycline for the Lyme. It made me so sick and I had such debilitating pain radiating through out my body that I had to stop taking it. I did call the Rheumy doctor on June 9th to let them know I was stopping the antibiotics, told them why and they said they would have the doctor call me back by the end of the day. Well, here we are 2 weeks later..............no phone call! I could not even walk I was so crippled and NO PHONE CALL???
Needless to say this left me wanting to find another Rheumy to treat with so I will probably set up a appt. with the doctor my Neuro referred me to.
I am going to France July 14th for 10 days so I do not want to start treatment for anything until I return home.
I am so darn happy that I was finally told, "You do not have MS"......yet I am still in limbo land and now it is either Lupus or MCTD????
So, does anyone know anything....IN LAYMAN'S TERMS PLEASE about MCTD?
I want to thank all of you here for being so supportive while I continue to hang out in the NOT DIAGNOSED YET section of this lovely place.:lol::lol::lol:
Your all a great group of people!!!:wink2::wink2::wink2:
As I have said before I was dx with Multiple Sclerosis in 2005 yet I have never accepted the dx and have always felt that the doctors were missing something big.
Well, I went to my Neurologist today for a follow up appointment for the MS. This Neuro doctor is great and for the last 6+ months he has worked with me re testing me and putting me through the gammett of testing for MS. Again, just as I expected nothing really points clearly to MS.
Here is where it gets interesting....................I gave him a copy of my most recent bloodwork that the Rheumatologist did and he looked it over very carefully.
He is now convinced that I do NOT HAVE MULTIPLE SCLEROSIS but instead either a Lupus or Mixed Connective Tissue disease along with a clearly positive Lyme disease diagnosis.
He recommended I see a Infectious disease doctor for the Lyme and he gave me a few names of guys he trusts. For Lupus/MCTD he said go see this Rheumatologist and he gave me the name of a guy he also trusts.
I told him about the Rheumy doctor I have been seeing and how he put me on Doxycycline for the Lyme. It made me so sick and I had such debilitating pain radiating through out my body that I had to stop taking it. I did call the Rheumy doctor on June 9th to let them know I was stopping the antibiotics, told them why and they said they would have the doctor call me back by the end of the day. Well, here we are 2 weeks later..............no phone call! I could not even walk I was so crippled and NO PHONE CALL???
Needless to say this left me wanting to find another Rheumy to treat with so I will probably set up a appt. with the doctor my Neuro referred me to.
I am going to France July 14th for 10 days so I do not want to start treatment for anything until I return home.
I am so darn happy that I was finally told, "You do not have MS"......yet I am still in limbo land and now it is either Lupus or MCTD????
So, does anyone know anything....IN LAYMAN'S TERMS PLEASE about MCTD?
I want to thank all of you here for being so supportive while I continue to hang out in the NOT DIAGNOSED YET section of this lovely place.:lol::lol::lol:
Your all a great group of people!!!:wink2::wink2::wink2: