[mum86]

Hi All

My son, 23yrs, started getting chest pains 4yrs ago and they diagnosed him with pericarditis - inflammation - sac around the heart - he had to have fluid which was building up, drained. At the time we did not link it to SLE, but having had the chest pains every year for the past 3 years he was diagnosed this year to have SLE. The is year he had a really bad flare up - inflammation of bowels, excessive weight loss, vommitting, diaorrhoea - this continued for wks, which resulted in - me contactting the GP to admitt him to hospital. He lost so much weight, going from 11st to 8st. The docs have prescribed him on predisilone and azathiaprine. His lupus is not visible, his is internal so I don't know if that is good in a sense it is not visable.. I know either way visable or not, it is not a nice thing to go through for anybody who has to go through with it. My son is doing well now, he is monitored regularly by the docs and has his bloods screened every 2 weeks, he is taking his meds and he is back in uni and working. I just hope we don't have to go through any more flare ups... the amount of heartache and tears we shed when he is not well.. is just so hard to bear... :sad:

 

[Clare.T]

Dear Mum86

I have moved your post from the chest pains thread on symptoms because it is such good news and I hope more people will see it. We need good stories ! I know what you mean about how hard it is to see our kids suffer, however grown up they are. Mine ( 41 & 31 ) are well but I still worry myself sick over one of them
Skin lupus is hard to live with and causes great emotional suffering but at least it's not life threatening or physically disabling like systemic lupus can be. Some people are afflicted with both. It's really good to hear that your son has responded so well to the medicines and that he's getting good care and really being kept an eye on. I hope he goes from strength to strength.

All the best to you all

Clare

 

[Katharine]

Hello there

I'm glad to hear that your son is now doing so well. He was obviously very poorly when he flared and as Clare said it is good to hear about people feeling better. I hope he continues to remain stable.

Katharine

 

[KarolH]

I am thrilled to hear that your sons health has improved and he is on the up swing. Let's hope it stays that way, for his sake and yours too.

It is tough, no matter how old our kids are, not to worry when they are sick. No one ever told us that you will always worry when your a mom.....no matter what.

I will say a prayer for your son and the family that he remains stable for a very long time.

Best of luck moving forward.:wink2:

 

[Zoi]

Hello there,

I'm sorry to hear about what your son (and you) went through because of his lupus but it's absolutely wonderful to hear he is well, responding to meds and back in university! :excited:

Keeping my fingers, toes and eyes crossed that your son remain flare-free and stable for a long, long time!

Zoi

 

[mum86]

Hi All

Thanks for all the emails of support and well wishes.. it's times like these when you really appreciate this website as it's were we can go for our moans, advice and most importantly our tears.. and what you get back in return is the confidence boost you need to get you through the hard times and realise that there are good days and may they override all the bad days we all have!!

xx

 

[Lupo30]

It's great to hear that your son is back at university! It has given me hope. I've been ill since May of this year with a flare and have had to take a year out from uni. It gives me hope. I hope your son continues to do well. You should be really proud of yourself and him. Well done!!

Lupo30

 

[mum86]

Hi Lupo30

Sorry to that you are unwell.. take each day at a time and think positive. I know it's easy to say but I do believe with the right care and love from people around you, this will help you towards getting better. At the end of the day, there is nothing more important than your health. Uni can wait, you can always go back and pick it up, just like my son, he started a 3yr Business Management course in 2002 and because he has been unwell for the past couple of years, he has had to repeat years. He has now enrolled for his final year again and thankfully staff at uni have been really helpful and supportive..I am looking forward for him to graduate and enjoy what he deserves... like you...

take care...