I had my appeal hearing today and they did a continance. So we play the waiting game again and get more doctor information sent in. The supervisor in my local office of the case workers gave me a hug today and said she is so sorry that they are making me go through all of this. She was glad that I did not let them start the whole thing over again.
I also went and picked up my new cpap machine today and it is great to sleep well again. It seems that my machine was putting out 4lbs of pressure and my setting is 9, so he said that was a big part of my not sleeping, not sleeping well, and only a part of some of the fatigue I was feeling.
All I can say is keep talking until someone hears you wheather it be a doctor, a social worker, or anyone else. I know it can be hard to do and much easier to give up but that might be the problem. Tell people or groups of people no long enough and they go away. Being sick is not an easy road but until you have walked the road you can not begin to understand what it is like to be in our shoes (so to speak).
Well that is my update for now and just wait for a new hearing date for the state medical card. They did try and tell me again that lupus can be cured and this time my reply was please let me know what the cure is I am now on a website for lupus that would love the cure along with thousands of other people that are not on the site. That put an end to the cure
8) I kept my cool this time and continued with the hearing that they did not want to be at.
Tammy
I also went and picked up my new cpap machine today and it is great to sleep well again. It seems that my machine was putting out 4lbs of pressure and my setting is 9, so he said that was a big part of my not sleeping, not sleeping well, and only a part of some of the fatigue I was feeling.
All I can say is keep talking until someone hears you wheather it be a doctor, a social worker, or anyone else. I know it can be hard to do and much easier to give up but that might be the problem. Tell people or groups of people no long enough and they go away. Being sick is not an easy road but until you have walked the road you can not begin to understand what it is like to be in our shoes (so to speak).
Well that is my update for now and just wait for a new hearing date for the state medical card. They did try and tell me again that lupus can be cured and this time my reply was please let me know what the cure is I am now on a website for lupus that would love the cure along with thousands of other people that are not on the site. That put an end to the cure
Tammy