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Discussion Starter · #1 ·
Hello.

I just want to update anyone who is interested in what I have learned the past few days about my health.

As you already know, my GP ordered bloodwork last week and she checked for several things. One of the things she was looking for was Lupus. I did not realize she was looking for that along with the other possible illnesses, but I'm glad she did. I was going to ask her to do that anyway if all of the other labs came back normal.

Long story short, my GP thinks I may have Lupus due to the results of the bloodwork and my symptoms. She wants me to see my rheumatologist as soon as possible. I have an appointment on August 27th. That's the soonest I could get in, which is a bit frustrating. If Lupus is confirmed I want to get treatment sooner rather than later.

I had several things come back abnormal in my labs. Some of them are related to Lupus and others are related to my thyroid and blood sugar.
I had high uric acid (10.0), a blood glucose level of 139, a low (53) eGFR Non-AFR.American (don't know what the heck this is), high calcium (10.5), low white blood cell count (3.6), high RDW (15.4), a positive Anachoice (TM) Screen (again...don't know what that is), and lastly...a positive ANA with a speckled pattern and a titer of 1:640.

I need to research some of these tests to see what purpose they have. My GP explained some of them to me, but I neglected to get an explanation for all of them. She is also checking me for cancer, but that is mostly to rule it out as a possibility. She ordered more bloodwork, a chest xray (I've had a dry cough for 3 weeks now), and a sonogram of my thyroid. She said it felt a little enlarged.

My blood sugar is a problem, which I fully intend to rectify. She (GP) told me that I needed to lose weight and that I need to come back in 3 months to have it checked again. If my levels are not normal at that time, I will have to be treated for it. I am going to make sure that I don't have to take medicine for something that can be controlled by diet.

So, right now I am waiting to see what the results of my new round of tests will be. I am so grateful that my GP is taking me seriously and is being so thorough. She is a real blessing and I thanked her for her sensitivity. By the time I see my rheumatologist I will have a lot of information for him (thanks to her).

Well, I've written a bunch so I'll stop here.

Have a nice evening everyone. :)

Rhonda
 

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Discussion Starter · #7 ·
Thank you ladies for your kind responses. I am finding myself getting more fearful as I begin to really take in the nature of this disease and the very real likelyhood that I have it. I have been on a year-long quest to find out if I have Lupus and, believe it or not, despite my fears I have a sense of relief to finally know that I probably do have it. That sounds strange, I know, but what I mean is that I now know that I wasn't imagining my symptoms or making more out of them than they really were. I've been vindicated to some degree. Plus I can get treatment for it and hopefully keep myself from getting really sick.

However, having said that, I don't want to have a major disease and I am very worried about my kidney function. I looked up what an eGFR test is for and I learned that it measures kidney function. My test was abnormal and that really scares me. My BUN and Creatinine tests were normal but just barely. I compared my current labs with my labs from December and back then my kidneys were functioning well. My labs at that time were very normal and the numbers on the BUN and Creatinine were much, much lower than they are now. This has me SO concerned, especially since I was retaining so much fluid a couple of weeks ago. It makes it all the more difficult for me to wait for my appointment with the rheumatologist in August. The good news is that all of the swelling in my ankles, legs, and hands has gone away and I am feeling better these days.

Question: Can kidney function values fluctuate with the onset or regression of a flare?

Thanks again for your support and advice. :)

Rhonda
 

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Discussion Starter · #10 ·
Thanks Maia and Lola. I'm trying not to think about it too much although it's hard not to. I've had a lower back ache all day today and in the back of my mind I'm wondering if it is related to my kidneys. :worried:

These are probably stupid questions, but can or will a GP prescribe medications to treat Lupus or does it have to come from a rheumatologist? Likewise, can a GP make a diagnosis of Lupus or does it have to come from a rheumatologist? I'm just wondering because I really want to get on medication as soon as possible and maybe my GP would be willing to do that for me. At the very least I am going to take your advice Maia and ask her to do a urinalysis as soon as possible.

Is my eGFR result (53) a seriously low number? Can someone explain this test to me further? As I said before, I did look it up on the Net but I didn't get very specific information on what the numbers mean.

Thanks! :)

Rhonda

P.S. I was not on large doses of NSAIDs when I my blood drawn. I took one 200 mg Advil and that's it.
 

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Discussion Starter · #12 ·
Thanks so much Lily. Your advice and the information has made me feel much better. I don't feel so anxious anymore.

I do have a wonderful GP and I am so happy to have found her.

I still have a lower backache today, but I'm just going to try and put it out of my mind as much as possible. I will ask for the urinalysis today and hopefully the results from that will make me feel even better. I'm trying to be positive about all of this as I know that a positive attitude plays an important role in improving my health and staying that way. It's not always easy though as I tend to be a worrier.

Thanks again for the advice and support. I do appreciate it very much. Everyone here is an angel!

Take care.:)

Rhonda
 

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Discussion Starter · #14 ·
Thanks so much Beci. I hope you can find relief too. The unknown is always so much scarier than knowing what the problem is and being able to deal with it appropriately.

We are blessed to have this message board and all of the sweet people here to help and comfort those who need it.

I appreciate your well wishes.

Take care.:)

Rhonda
 
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