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HI, I have not posted on the site before. I have had Lupus for a little over 5 years now. I take plaqunil and codeine phosphate and NSAIDs. Once controlled by the drugs, I have been doing pretty well, for which I am very thankful, until just a few months ago. I am know in much daily pain in a specific area of my body. My GP keeps telling me it is my hamstrings, but this is not consistent with what I read about such pain. I cannot get an appointment for my rheumy for some time. I was wondering if anyone else has had my symptoms. I am desperate to find out if it is a Lupus 'thing' or not, so can't even begin to work out how to help myself.
I have throbbing and bruised feeling pain at the back of both legs, right at the very top where they join on to my bum. This is both legs, hurts to walk and painful to sit. The first few times I had this was after bending in the garden, so I thought I had pulled something. However, as time has gone on I have it almost all of the time, whether I have done anything or not. It is very, painful and miserable. As I am sitting her writing this my lower bum area and upper legs are throbbing and feel all tender and bruised. It cannot be hamstrings I am sure. Please help, let me know if you have any experience of something like this with your lupus. It is a pain in the bum literaly. I am only comfortable when lying on my side. Thankyou.:(
 

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Hi There

Welcome to the Forum. Im sorry to hear about the pain you are in. I get very similar pain to what you describe and at the moment its been there for the past couple of months. Its very debilitating and sitting down on a hard chair is very painful. Even walking around is painful actually. Sometimes the pain spreads a bit around the inside of the leg nearer to the 'crotch' area as well.

I wonder if you might have Fibromyalgia? I do, and I believe the pain I have is part of this condition. One of the trigger points for fibro is in pretty much the area you describe. Here is a diagram of the trigger points:



About 30% of patients with SLE also have Fibromyalgia. It might be worth looking it up and seeing if you have any of the other symptoms. If you cannot get an appointment with your Rheumy in the near future you might want to raise this with your GP. There are specific medications which can help with Fibro.

Others might come along with different ideas but I thought the Fibro one was worth considering.

Best of luck and let us know how you fare out

Take care for now
Joan:rose:
 

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If your hamstrings are tight you can have pain in those areas. You can also have pain radiating further down the legs. Sitting seems to be the most uncomfortable position when it happens to me.

Alternating heat and cold packs helps relieve some of the pain. Simple stretches will help also.

It wouldn't hurt to get a second opinion if you feel the diagnosis is incorrect.

Take care,
Lazylegs
 

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Also yoga is wonderful for helping to stretch tight muscles and alleviate pain.

You can purchase a dvd to use at home much cheaper then in a gym.

Wanted to say welcome and hope you find this forum as invaluable as I have found it.

Join us in the chat room sometime.:wink2:
 
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