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191 Posts
Had a rheumy appt today and was discharged from the clinic. The results of all my last lot of blood tests had gone back to normal ranges except polyglobulin which is rising. He also reffed me for physio and suggested I start taking plaquenil (not sure of spelling) as my wrists are currently swollen. He said if things flare up he will be happy to see me again and that 50% of people in my position go on to develop a diagnosable connective tissue disease. Basically, the bottom line is I should just go away and see if it gets a lot worse.
My bone scan showed a hot spot on my jaw but he made no suggestion as to whether I should do anything about that or not.
So now my symptoms are:
ongoing low back pain
intermitent inflamation shown in blood tests
Intermittent low lymphocyte count
chronic depression
cluster headaches
rising polyglobulins (not sure of exact word)
livedo reticulus
chronic fatigue
muscle pain and cramps
but I don't think I have butterfly rash (though I do go red a lot in the winter)
I do get a couple of mouth ulcers a week but I've never mentioned it because they go as quickly as they come (they often only last a few hours)
I don't have other strange rashes - but i did once for about 3 years then if went again and so far has not returned.
I am glad its nothing definately nasty, but I don't know what to think now. Should I try the plaquenil? Have I been imagining it or making it worse in my head?
I sort of feel a bit abandoned with all my questions.
My bone scan showed a hot spot on my jaw but he made no suggestion as to whether I should do anything about that or not.
So now my symptoms are:
ongoing low back pain
intermitent inflamation shown in blood tests
Intermittent low lymphocyte count
chronic depression
cluster headaches
rising polyglobulins (not sure of exact word)
livedo reticulus
chronic fatigue
muscle pain and cramps
but I don't think I have butterfly rash (though I do go red a lot in the winter)
I do get a couple of mouth ulcers a week but I've never mentioned it because they go as quickly as they come (they often only last a few hours)
I don't have other strange rashes - but i did once for about 3 years then if went again and so far has not returned.
I am glad its nothing definately nasty, but I don't know what to think now. Should I try the plaquenil? Have I been imagining it or making it worse in my head?
I sort of feel a bit abandoned with all my questions.