I am sorry you are feeling so low and there's no need to apologise for asking for help.
Nobody 'moans' here! We share the ups and the downs.
I see from reading your other posts that you are also on Methotrexate, so whether diagnosed officially or not you are being treated for rheumatic type disease or connective tissue disease. These are chronic conditions that have often been brewing for many years. There is no overnight remedy and it often takes time to find the right mix of medicines for each person as each case is slightly different. People respond differently and experience differing side effects for one thing.
I am steroids 20mg/day and yesterday didnt took it in the morning, by evening I was a pack of pains and the night was even worse...
( also whats the effect of such a big dose? im on it for last one week and dr says he will take me out of these asap...)
The steroids rapidly bring down inflammation and thus reduce symptoms.
Short courses are often used initially while waiting for other medicines to take effect which is usually several weeks or even months. They are also used to cope with major flare ups of disease and are essential treatment for some sorts of organ involvment.
20 mgs a day is a moderately high dose. There's a wide range of possible short term side effects and numerous serious long term side effects which is why steroids are used as little as possible
Today I feel depressed and saddened as I realise my body is as sick as before just that these medicines are covering some of the effects but dont treat anything at all.
I don't know what you mean by 'treating'. They aren't going to cure anything, because there is no cure for chronic diseases but they certainly are dealing with symptoms and reducing disease activity thus preventing permanent damage. (Hopefully!) They are the first step in stabilising the disease and even getting it into remission whether medicated or not.
For past 5 days Ive been going down rapidly and cant get rid of a very painfull shoulder pain.
Can you get in touch with your rheumatologist ? it's possible that the shoulder pain has nothing to do with lupus and needs further investigation. It's also possible that it can be treated separately, maybe with a steroid injection or perhaps you could do with further medication such as non steroidal anti inflammatory medicines.
It is rather puzzling that he hasn't started you on Plaquenil which is usually tried before Methotrexate and is a baseline medication for lupus whatever other meds are needed in addition.
These early days are usually very difficult. There's the relief at being taken seriously and at last knowing or having a good idea what's going on. But there are still fears for the future and the hard realisaton that this is a chronic disease.
What about reflexotherapy? Im going today to speak to them about some sessions, found really good things abt it and been told it works on lupus....
There is a very wide variety of complementary therapies and life style adaptations that can be very helpful in relieving symptoms, promote general health and emotional and psychological well being, and learning to live with the disease as best as possible.
The first question to ask yourself has to be " Will this do any harm?"
Reflexology won't, so long as you have a reliable practitioner. Stay right away from any practitioners who claim to be able to cure or who try to stop you taking medications. They could cost you your life. Tell your doctors of anything you propose to do and check any supplements or herbal medicines out for yourself, not believing anything that's written by people who stand to put money straight into their pockets by selling the product or services.
We have a Complementary Therapies section with lots of information and suggestions and there's a lot of very well informed experienced knowledge available here. It's a huge topic !
All the best and talk again soon - let us know what your doctor proposes.