Vision issues with Plaquenil???

Hi Karol

Im glad that you dont have any immediate or urgent problems with your retina but never neglect eye concerns overall. If you are very worried about this then see your eye doctor as soon as you can.

My eyesight has deteriorated significantly over the past year but its nothing serious other than poor vision. According to my opthmalogist all I need is magnifying glasses which can be bought very cheap over the counter. I have bought several pairs of these and they really help to read instructions on packets etc.

I cant read newspapers or books anymore without them. Its a pain in the butt. I reckon I will never know if my deteriorating eyesight is due to natural progresssion, meds or disease activity. All I know is that I have loads of magnifying type glasses everywhere around the house and once I have them on me I can see great!

Let us know if you have any continuing problems

Luv n stuff
Joan:rose:

Hello Karol

I know that there can be some temporary initial side effects on the eyes which soon clear up, blurry vision and even seeing double because the side eye muscles get affected. Dr Wallace says on p211 of the 2cnd edition of his The Lupus Book that patients complain all the time that they have blurred vision. It was Dr Hughes who mentioned the muscle business but I am unable to source it accurately. Anyway that doesn't matter because if there's any concern about a side effect a doctor needs to be consulted if at all possible. Advice shouldn't be taken from a forum member when it would mean not getting oneself checked out by a health care professional.

All this sort of information and other people's experience's can do is either reassure until medical advice an be obtained, or of course the adverse experiences can lead to unnecessary worry. You can't be sure it is unnecessary until you have asked a doctor.

On the same page, Dr Wallace writes " There has never been a case of permanent eye damage from Plaquenil with normal kidney function in any patient who has had an eye examination every 6 months and who has taken the drug in doses of less than 5mg per kilo a day for less than 10 years." Perhaps there's also the proviso that the patient has been cleared of any pre existing contraindications before taking or within a couple of months.

All we can do is accept that statement as being as accurate as anything anybody says from thousands of years of doctor/patient use of these drugs. We can't know exactly what any individual patient's experience was medically nor can we ask their doctors exactly why they decided to take their patient off the drug. I am sure that it must often be to avoid taking any risks whatsoever and reduce patient concerns, given that there is the alternative Mepacrine ( called Quinacrine in the USA) which does not affect the eyes at all.

Your prescribing doctor should be able to reassure you from her experience or refer you to an ophthalmologist to make quite sure or get a second opinion. In the USA there is the very real question of liability.

Steroids can affect the eyes of course and if you're diagnosed in your 40's that is the classic age for eyesight to start deteriorating anyway.

Let us know what happens Karol . If you are advised to stop it, find out exactly why please and let us know that too!

Bye for now
Clare

Thank you all for your replies. I just love the fact that anyone can come here and get support and information from others....and for that I really do thank you all.

Today my eyes are better then yesterday but far from normal. I did send my husband out to buy drops for dry eyes thinking maybe this is the issue. We will see if it helps.

I do not need glasses, have 20-20 vision but like Joan I need the dollar store magnifying glassed to get by reading a book, news paper or cooking instructions on a package. It is mind boggling to have perfect vision and be blind as a bat...:rotfl::rotfl::rotfl:

I will try the drops and give it some time. If it does not get better or gets worse then certainly I will be calling my doctor next week.

I do hope your all enjoying your weekend with family and relaxing.:wink2::wink2: