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Discussion Starter · #1 ·
I've made a very hard decision. Very slowly over the coming months I'm going to wean off all my pain meds. Right now I'm down to 3 doses of 600 mg Neurontin (gabapenten) a day and 30 mg three times a day of ms contin (morphene). It's become clear that I have to do one of two things, either accept a higher morphene dose (again) or just quit the stuff altogether. I am 50 and hope to live to be quite old. At some point it's not going to be possible to take more morphene and I will simply be taking a very high dose to avoid withdrawal symptoms while hurting.

I have asked my doctor to help me work this out. He agrees that once I am off gabapenten he will start me on Lyrica, which should help some of my fibromyalgia symptoms. I also want an RX of morphene for times when the pain spikes.

My pain threshhold is very high now. What I perceive as pretty bad pain would have had me screaming five years ago. I have worked hard to develop meditation skills and relaxation habits and to learn that sometimes I just have to stop.

I have put a lot of t hought into this decision. Still, I'm scared. But determined. I have been off prednisone for 9 months or so now. I still t ake plaquenil, paxil, immuran and I take amtryptilene when I can sleep late in the morning without problems. Lately I've been fighting urinary tract infections and flares of interstitial cystitis. The last time I took cipro for a week and it seems to have done t he trick.

Anyway, I guess I'm telling you guys because nobody else will understand. And I'm asking for support while I do this. I will try not to complain too much. I just have to stop taking meds that do nothing for my pain. I hope I'm strong enough to deal with what comes next. Pain is already a constant in my life..... well, enough

Thanks for listening,
Sunny
 

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Sunny:

How Brave you are! We are here for you and may the angels watch over you and hold you up when you need it.

Stephanie
 

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Sunny,
My thoughts and prayers willl be with you.

lots of hugs,
Lyn
 

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We're all with you Sunny :grhug:

Sounds like you've really thought this through. Let us know how it goes - although the censor may kick in if you post on a bad day :lol:

Seriously, I hope it goes well & you know you can PM me anytime.

Luv'n'hugs,

Pam xxx
 

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I hope you are successful at doing this and are able to manage the pain without the strong pain medications. I'm sure it will be tough going at times, but we'll be here to listen and support you as much as we can.

Best wishes for as smooth a journey as can be expected for this process!
 

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Sunny,

I know you have put a lot thought into this decision and I hope you have a sucess on coming off the pain meds. I am here with all your lupie friends if you need us. Please keep us informed on how you are doing and I hope your pain levels decrease soon.

Big Hugs,:hug:
JEN
 

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I can totally relate, I just came off my pain meds on the advice of my Dr as I was like you they were not working much anymore as my system had become so tolerant to them, so it took me around a month and some horrible withdrawal symptoms but I made it and you know what I actually do feel better, now I only take a pain med when I'm hurting so bad I can't make it all day at work without something, you do what you have to do. I wish you all the best:)
 

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Sunny
You will recieve an awful lot of support from all of is while you try to get weaned off of the meds.I sure understand why you do want to go off of them though.Trust me sunny it is not called whining when you are feeling so lousy and if it helps you to post please do and let us know how it is all going for you please.Take care sweetie and we are here for you in any way you need us:) .((((((((hugs)))))))))

Tammy
 

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Discussion Starter · #10 ·
Thank you, all of you, for the kind words and support. Because of a really bad experience a couple years ago when I switched from morphene to methodone I'm going to go really slow coming off the ms contin. And I'm not going to start that until I'm completely off the neurontin. One thing at a time, I figure. It may take all summer to get this done, but that's okay.

Say, if any of you know how to contact Jude, please let me know in a pm. I have made a quilt for her and want very much to send it to her but have no idea how. Jude, if you are reading this, sweetie please contact me.

Hugs,
Sunny
 

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Sunny:hug:
I think you are incredibly brave and a very strong person to attempt this.

You know you have the support of the forum and with this being such a busy site around the world there will be someone there for you at all times.

I'm, wishing you the very best of luck and you are right to take it slowly

Will be reading your progress and rooting for you
 

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Sunny,

I admire anyone who takes decides to take themselves off pain medications. Going off a narcotic or other form of pain relief is very difficult and really shouldn't be done without your physicians knowledge so that he can monitor your progress.

Good luck
Nancy
 

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you are a very strong woman and everyone here is behind you! i have been considering doing the same thing but haven't been able to *quite* get there yet. kudos to you sunny. as for the "all summer" thing...remember: slow & steady wins the race!

hugs!

carol
 
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