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Discussion Starter · #1 ·
I've made a very hard decision. Very slowly over the coming months I'm going to wean off all my pain meds. Right now I'm down to 3 doses of 600 mg Neurontin (gabapenten) a day and 30 mg three times a day of ms contin (morphene). It's become clear that I have to do one of two things, either accept a higher morphene dose (again) or just quit the stuff altogether. I am 50 and hope to live to be quite old. At some point it's not going to be possible to take more morphene and I will simply be taking a very high dose to avoid withdrawal symptoms while hurting.

I have asked my doctor to help me work this out. He agrees that once I am off gabapenten he will start me on Lyrica, which should help some of my fibromyalgia symptoms. I also want an RX of morphene for times when the pain spikes.

My pain threshhold is very high now. What I perceive as pretty bad pain would have had me screaming five years ago. I have worked hard to develop meditation skills and relaxation habits and to learn that sometimes I just have to stop.

I have put a lot of t hought into this decision. Still, I'm scared. But determined. I have been off prednisone for 9 months or so now. I still t ake plaquenil, paxil, immuran and I take amtryptilene when I can sleep late in the morning without problems. Lately I've been fighting urinary tract infections and flares of interstitial cystitis. The last time I took cipro for a week and it seems to have done t he trick.

Anyway, I guess I'm telling you guys because nobody else will understand. And I'm asking for support while I do this. I will try not to complain too much. I just have to stop taking meds that do nothing for my pain. I hope I'm strong enough to deal with what comes next. Pain is already a constant in my life..... well, enough

Thanks for listening,
Sunny
 

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Discussion Starter · #10 ·
Thank you, all of you, for the kind words and support. Because of a really bad experience a couple years ago when I switched from morphene to methodone I'm going to go really slow coming off the ms contin. And I'm not going to start that until I'm completely off the neurontin. One thing at a time, I figure. It may take all summer to get this done, but that's okay.

Say, if any of you know how to contact Jude, please let me know in a pm. I have made a quilt for her and want very much to send it to her but have no idea how. Jude, if you are reading this, sweetie please contact me.

Hugs,
Sunny
 
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