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I kind of already posted something about Wegener's Disease in my introduction but I thought I would ask this way too.
I've been diagnosed with Lupus from my Rheumatologist. My family doctor, ENT, Pulmonologist, and Nephrologist also believe I have Vasculitis with a strong possibility of Wegener's. I've had a huge problem with my sinuses, lung infections (pneumonia) and blood in my urine. I also have asthma.
My frustration is that my Rheumatologist does not agree. She said I would be very ill if I had Vasculitis or Wegener's. My Nephrologist said that is not true that there are milder forms.
I'm under control, somewhat. I take Plaquenil and Mobic. I've also been put on Bactrim indefinitely (Nephrologist) to prevent problems with my sinuses and lungs. My Rheumatologist is considering starting me on Methotrexate if I fall back again or show more signs of inflammation.
Any help would be greatly appreciated.
Thanks!
Michelle
I've been diagnosed with Lupus from my Rheumatologist. My family doctor, ENT, Pulmonologist, and Nephrologist also believe I have Vasculitis with a strong possibility of Wegener's. I've had a huge problem with my sinuses, lung infections (pneumonia) and blood in my urine. I also have asthma.
My frustration is that my Rheumatologist does not agree. She said I would be very ill if I had Vasculitis or Wegener's. My Nephrologist said that is not true that there are milder forms.
I'm under control, somewhat. I take Plaquenil and Mobic. I've also been put on Bactrim indefinitely (Nephrologist) to prevent problems with my sinuses and lungs. My Rheumatologist is considering starting me on Methotrexate if I fall back again or show more signs of inflammation.
Any help would be greatly appreciated.
Thanks!
Michelle