[cjmclaughlin]

I have major joint pain and am basically a big ball of pain. I'm currently on Mobic, Toprol, Cholchicine, Prevacid, Calcium, Xanax, Lexapro, Lamictal, and Plaquenil. I had been given some Vicodin for the pain but it isn't working much and I am at my wit's end with how I am feeling. I called my rheumy and said I can't take it anymore and was wondering what some of you are on for joint pain? I also am dealing with pericarditis and pleurisy. I've been on prednisone in the past but I've borderline osteoporotic at 32 so my rheumy is apprehensive to put me back on that. This is the worst my lupus has been in the 8 years that I have been diagnosed.

 

[karen.w.]

Hi

I'm sorry to hear you're feeling so bad at the moment :sad: It can become overwhelming when in constant pain.
what did your rheumy say when you rang him/her?

personally I take ibuprofen and codeine phosphate for my joint pain..I am also on plaquenil and immuran, although the immuran isn't working anymore..when I'm flared I also have steroid injections...however it might be wise to speak to your doctor before taking any other meds?

If you're having ongoing problems with your joints your rheumy may suggest one of the immunosuppressive ( sp? ) drugs like immuran, methotrexate etc?

try and get plenty of rest and I hope you can see your rheumy soon
sorry I can't help more :blush:
big hugs to you :hug:
take care, karen x

 

[Maia]

There are a number of different NSAID's that can be tried... I went through at least 6 before I found one that worked for my joint pain. For me, that was Vioxx which is no longer available of course. Just my luck! *laughs* Many here find Mobic or Celebrex to be very good for joint pain, and literally there are at least a dozen you could try and probably more.

For severe episodes, many doctors will try prednisone for a brief period of time but you have some background factors that may preclude this.

I will take Tramadol on my worst days but I need to take a pretty low dose or else I get bad side effects from it so it's minimally helpful too. Others will take stronger narcotic medications, including the patches. Usually, you would need to go to a pain management doctor for those medications though.

I second the suggestion of trying some other disease modifying drug, especially true the longer your severe flare lasts. Hope this flare lets up soon for you... one way or the other!

 

[cjmclaughlin]

Thanks so much for advice. I can't take ibuprofen as I have horrible side effects from it. I had been taking 20 extra strenght tylenols a day before and that was helping to keep the pain at bay but I got yelled at for taking that much. I definitely think I need some disease modifying drug as I can't take many pain killers as I am the primary caregiver of a 3 &4 year old so can't be anymore fatigued I am on Mobic and it had been working until recently. Celebrex had worked years ago but then stopped so wondering if the Mobic is doing that also.

Anyways, my rheumy called back and called in prednisone (for a short time period) for me in the hopes that it will kick start the cholchicine and if I'm not better by Monday then I need to call and go and see him. I'm really afraid of the higher order of meds like Methotrexate so hope something like this will work:blush:

 

[keebler]

Lupus seems to be liking my joints. At each visit to my rhumey he finds more swollen joints.

My rhumey and I decided it was time to try another med. That is methotrexate. I took it for a month. Then I got sick and had to go off of metho for a couple of weeks while I was on antibiotics. I will start back on metho next week.

I am hoping that the metho will kick in and I can get off of my one pain med. Good luck in your choices of meds.

Take care,
Lyn

 

[LupusLyn]

Sorry you are in such pain!

Has your dr. ever tried Lyrica. I take that and it really helps joint pain. And also tart cherry juice. I have a friend that has such bad joint pain and he went on cherry juice and said it worked better than any drug he tried. You can get tart cherry juice in the freezer section at the store or in pill form at the health food store. It works as a natural anti-inflammatory.

Hope you find something that works for you!

Lyn

 

[Weese]

pain medications

Hello,
everyone seems to have a favorite but i like mobic. It seems to help me best and i have been on a few nsaid's over the years. It is also pretty cheap at walmart, three month supply for only ten dollars. I have been on pamalor for quite a while, a tricyclic antidepressant that will block pain receptors. I also had been taking Ultracet for pain two tabs up to four times daily.

Last week i went to my new doctor at the pain center. They had done radiowave ablation on my lower back a few months ago. He changed me to Ultram ER 200mg once daily. Besides loving anything that is once daily, it really seems to be helping my all over joint pain. it was just today when i realized that for the last two days my pain has been much lower.:thumbs:

Good luck, seems what works for one person dosent do anything for the next. It is really all trial and error and hope you find a mixture that works. Hope you get to feeling better soon :bigsmile:. Lisa