I have had Chronic Fatigue Immune Syndrome since 1998. CFS and Lupus have so many of the same symptoms. Since that time my ANA has ALWAYS been positive. It's either been 160 or 320 and it went back and forth. The pattern has ALWAYS been either Homogenous or speckled and again back and forth.
I also had the rash on my face, neck and chest and sun sensitivity ever since 1998. I ran fevers back then of around 102 and 103 but they never stayed. Since last year I really don't get the fevers. The other day I had 100.3. I have debilitating fatigue from the CFS. I am on disability because I couldn't work anymore because of my symptoms and each year I was getting worse. I have orthostatic intolerance and low blood volume (not anemia).
My white count has ALWAYS been around 2's and 3's. When I first got sick it went way down to 1.9. My platelets were al screwed up. But over time, platelets are fine and my white count is always low. January was 2.3 and now is 2.1. My ANA is now 640--which has never been that.
So now the question is this? How do you tell if I have Lupus on top of CFS or just CFS. I have CFS because of the OI and low blood volume.
CindyLo
I also had the rash on my face, neck and chest and sun sensitivity ever since 1998. I ran fevers back then of around 102 and 103 but they never stayed. Since last year I really don't get the fevers. The other day I had 100.3. I have debilitating fatigue from the CFS. I am on disability because I couldn't work anymore because of my symptoms and each year I was getting worse. I have orthostatic intolerance and low blood volume (not anemia).
My white count has ALWAYS been around 2's and 3's. When I first got sick it went way down to 1.9. My platelets were al screwed up. But over time, platelets are fine and my white count is always low. January was 2.3 and now is 2.1. My ANA is now 640--which has never been that.
So now the question is this? How do you tell if I have Lupus on top of CFS or just CFS. I have CFS because of the OI and low blood volume.
CindyLo