[KitKat]

Hi all,

A couple of months ago I collapsed at work and since then I have gone through a series of tests. A couple of weeks ago one of the tests came up with something funny and the Dr said she was taking a biopsy because she was concerned about cancer. Yep heart stopping moment!
Imagine my huge joy and relief when on Friday I heard I didnt have cancer!!!! YAY! :yahoo:

On here we often talk about the struggles that this disease causes - and rightly so because we need a safe place to share the difficulties and frustrations with people who understand - but I wondered if anyone had any high points during their tests and treatments for Lupus?

So for me the high points at the moment are...
Last Fridays results and meeting the most inspiring lady during my last hospital stay - if I can be anything like her I would have achieved something amazing!

God Bless
K

 

[Salopsally]

Hi KatKat,
So pleased to share your good news. Thank goodness for that.
Ive a story similar to yours. I had a cancer scare 3 years ago and mine turned out to be ok too. What a relief that was. The waiting is terrible though I know.
Then talking about inspiring people... When I was in hospital before I was diagnosed with Lupus I couldnt move some days and the lady in the next bed who had had her leg amputated got out of her bed into her wheelchair and wheeled herself over to my bed to cover my feet up for me. What a lovely lady. We still keep in touch by sending text jokes to each other. Shes now got a new leg and is doing well and Im sort of in a bit of remission.
Some dark cloudy days sometimes eh but often there are silver linings along the way.
Best wishes,
Sal x

 

[Zoi]

Hey there! I'm so glad your cancer scare was only a cancer scare!!!!

The high point of lupus?!!?! What a wonderful idea!!!!

A definite high point for me was when I first had meningitis a couple of years ago. I was in a neurology ward in unbelievable pain, had never been seriously ill before, kept falling in and out of this deep haze and didn't really understand much of what was going on around me. Well there was a lady who is a family friend of ours and who 4-5 months before had lost her son who was the same age as me and she would come to the hospital every single day, dressed all in black, and she would sit next to me for hours holding my hand, sending my mum home to get some rest, bringing me clean clothes, talking to me so calmly and telling me it was all going to be ok. I was in this state for about a month and bedridden at home for a while after that and she never missed a single day. Definitely not a medical high point, but it is a human one in my book.

Also about a year ago I met this wonderful lady with systemic scleroderma, very ill and with severe organ involvement who was undergoing high dose cytoxan treatments on the same days I was. We had both been stuck in hospital for a while just on different floors. We didn't talk about lupus or aps or scleroderma or prognoses at all but on "chemo days" I would get us ice-creams and wheel myself in her room and we'd laugh about silly stuff together and on the days following the chemo ones when my nausea hit she would get her sister to bring me home-made food in my room along with this wonderful ice-cream the hospital didn't have and a promise to get it if I ate a little bit. Sofia was one of the most inspiring people I have ever met, so funny and clever and cared so much about others until the end. Her dignity and courage have left me with a deep sense of happiness that I was given the chance to meet her and with a sense of awe and respect for her.

I'm afraid both my high points aren't very pleasant nor are they medical ones for that matter (I don't have any medical ones to be honest! lol ) but I wouldn't change a moment of either for the world. It was Michael J. Fox I think who, in his book, said his disease is a gift but if it is a gift it is the gift that keeps on taking and I couldn't agree with him more. My diseases, both of them, have taken so much away it seems cruel and unusual at times but they give so much back. And those human moments of dignity and strength and compassion and of picking one's self up time and time again are priceless and are things one might have otherwise not experienced without the fear and agony and loss that accompany them. And let's not forget that no one here would know one another had we not all been ill; now that must be a definite high point of lupus!!!!!

What an interesting thread!

Zoi

 

[Douglas]

Dear KitKat,
I am so grateful for your good news.
All blessings!
Douglas+