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Discussion Starter · #1 ·
Hi everyone,

Haven't been online for a while as not felt like talking. I am still off work and trying to recover from my flare in March 08, but seem to have stagnated.
I have recieved my blue disabled parking badge, which I was advised to apply for as still need a stick to help with walking. I am still needing regular rest periods due to extreme fatigue, need help with bits at home and not able o return to work. The latest blow is that I have to be assessed by the Occ Health Dr to see if I am allowed to return to my current post as SSN in ED, which is the only job I have ever wanted to do since I was little. I am trying to improve my fitness, having regular hydrotherapy and each day go for a walk with hubby and try to extend the distance I can walk without my stick, although some days I can't manage as far as the day before. If I can walk without the stick and manage a 4 hr shift I can start back on phased return, but I don't know where I would be working as could be redeployed to another area of the hospital. I've had to increase my pred again, still have joint and muscle discomfort and my moods are up and down like a yo-yo, one minute I feel positive and confident the next I cry at the slightest thing and just want to shut myself away. If I'm not allowed back to work by beginning of September then my wages drop to half pay, which will only add to the stress as this will then cause financial problems. I don't know what to do or which way to turn, but am trying to remain positive for my family as I don't want to cause them anymore worries.

Sorry to moan, but I am feeling confused etc. and don't know what to do. Are these feelings/mood swings part of Lupus and the infamous question - will I get any better or am I at the best I am going to be now?

Take care everyone

love beanbag :sad::worried:
 

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31 Posts
Discussion Starter · #5 ·
Thanks to you all for your advice and support. I am trying to stay positive and think of ways I can adjust my hours etc. for when I return. Last year I reduced my hours to 30, which did help but I think the 12 hr shifts didn't. I am in discussion at changing my shifts to 7.5 hr, means I'll work 4 days instead of 3 but at least they are only short shifts instead of 2x12 hr and 1x6hr. Also contacted RCN (as advised by colleagues) to enable me to know what my legal rights are and what questions I need to ask when I have my review next month with HR, management, Occ health etc.

Once again, thanks for your support. I'll keep you posted. Just off for my afternoon nap then going to make some more christmas/birthday and anniversary cards. A hobbie I love doing.

Love beanbag
 
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