[onetay]

My boss came to me today and informally asked me to be the front office super. She wanted me to have some time to think about it. It would mean more hours some and more responsibility. I am not sure My body can do it. I have waited 9 years for a chance to move up in the company so it is a great opportunity for me to pass up. She has said she will work with me and the problems I am having with my lupus right now. She also said she wants me to take the position I have been doing most of it since 2000 anyway I would just have the title and the pay finally. I would like all of your advice and wisdom please.
Thanks,
Tammy

 

[LolaLola]

Dear Tammy,
If you are doing the job already, perhpas it would be good to have the name and the pay rise. Certainly you sound capable of it,but do think of ways you can make your life easier if you go ahead.
Good Wishes,
Lola xx

 

[onetay]

hi lola,
Thank you for the quick reply and I am thinking or trying to think of everything. That is why I posted this. I'm just scared that I will take it and this lupus will take it away from me. I am currently not on my plaq. for money reasons. If I was on it I might not have to think about it for long. Again Thank you so much for your support and advice.
Tammy

 

[LolaLola]

Dear Tammy, for what it is worth, I am always here to listen if it you want to run through your options. I am so sorry to hear about the Plaquenil, it is such a good help to people, it is scandalous that you can't have it.
PM me if it would help.
x Lola

 

[lazylegs]

Hi Tammy,

Only you know how your body feels. My advice is to make a list of Pros and Cons. When I see things written out I get a much better perspective of the situation. Good luck making your decision.

Take care,
Lazylegs

 

[cath]

Would the pay rise be enough to be able to afford the plaquenil? If so, I'd go for it.

Have you tried local charities to try and get funding for the plaquenil? I;m not fammiliar with US systems, but I believe there are several possibilities for getting essential meds when you can't afford them yourself. It really is an essential med , and I'd urge you to do anything you need to to get back on it.

X C X

 

[Douglas]

May you be guided to the right decision!
It is amazing that you, with an autoimmune disease, can do such a good job that you are being promoted. Good for you!
All the best, whatever your decision may be.
Douglas+

 

[onetay]

To All,
Thank you for your advice and for all the help and support. I wanted to first say that. It has been most helpful to ask my question and get the replies and thoughts of all of you.

LolaLola plaqs was the reason I believe that I had been able to do so much so far. It was good for the fatigue, I don't mean I didn't have any but it helped some. It would be nice if people could get the meds they need, I mean no one asked any of us if we could afford the diseases before we got them so why do they think that making the good meds that help so costly you can't afford them.

lazylegs, you are right it does help and I thank you for reminding me of that. I will try to listen to my body and do what I can to help it.

Cath, I don't know at this point if it would be enough for the med, but I have tried charities and had no reply from any of them but i know they are flooded with people asking for help. I know that my job and life would be easier with the meds.

Douglas, thank you for your support it means a lot to me, as I have not had much in the 15 years of having lupus. I have worked since I was 14 years old and really don't know what to do but work. I love to work that is my problem. If this disease wants to hurt me the most that is the one thing that would make life to hard to handle. I am not a person to be supported by a government as long as I can get out of bed. I don't blame anyone for having government help but I guess I am saying work is my life it always has been.

I have thought about it and if I don't do it I feel later I will be sorry for not taking the chance I have worked 9 years to do. I will be taking the job and hope that my boss will work with me and the lupus to both of our advantages. I will let you all know how it works out.
Thanks so much again for your time,
Tammy

 

[Raglet]

hi there

based on my experience with working, the key thing would be how flexible is the job. I need a lot of flexibility which I have in my job, so I can work far more hours then I could if I have to be at work during set hours. I am on flexitime, also if I want to work half day one day then make it up over the rest of the week that is just fine. At times I even work from home. Also, I get additional sick pay though I am very careful not to abuse that (call me obcessive about it).

I work 30 hours a week, but I just couldn't do it without the amount of flexibility I have. Sometimes I even come home in the middle of the day, sleep a couple of hours then go back to work.

But, it does depend on what your work requirements are, and what works for you. Maybe you don't need so much flexibility. The one thing that I do know is that if I didn't work I would go stark steering insane .....

good luck with your decision

raglet