Hi I went to doctor on Monday as I have been suffering with another flare of joint swelling, pain and stiffness, only to be told that I have got lupus and hughes syndrome. The letter was dated August from the rheum whom I saw 2 weeks ago who never siad anything!!
What really gets me is that the gp said not to worry as the rheum siad I could have painkillers and that would help:rotfl:
I am going to see about a referral to st thomas and am reading the lupus book by Dr Wallace.
Its just that although I expected at some point to be told that is what is wrong, I have found it to be ahuge shock, and I am struggling with anger, sadness and fear.
My brain fog has returned with a vengeance along with my spasms and speech loss to add to joints.
I am feeling very alone, although I have been reading the posts and they really help.
Sorry for rant but has anyone got any survival tips?