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Discussion Starter · #1 ·
.....when i go to the rheumatologist tomorrow and they dont believe me. I rang to try and find out whether my anticoagulant result is back yet and they recoken i was given a second one which was normal - what happened to the first one?, how come i didnt know i was having another? - what about the elevated appt - i don't know what they are doing anymore.

Im really starting to think i won't be believed and am frightened someone will try and stuff me on anti d's again. Im also frightened ill just take them and everyone will think less of me :(

Rant Over - i don't know what to do, think, say anymore. Maybe i am just depressed and should just get on with things.
 

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Kiara,

Stay strong, give the rhuemi a copy of that list, answer all questions, dont put yourself down, dont under exagerate symptoms, wear underwear thats okay for docs to see, shave legs and armpits :lol:.

Be brave and assertive!:wink2:

Let me know how it goes as I will be offline until late evening tomorrow!

Lots of hugs!

Lesley
 

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Yep Kiara, I agree with all Lesley has said and remember, as I said in chat

BELIEVE IN YOURSELF!!!!

many hugs and super positive vibes,
:hug:

Katharine
 

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Kiara,

Forgot to say, take those pictures you let me look at too, to show the consultant!

If you have not got prints of them, then just take your camera or phone that they are on along to your appointment too!

Take care and good luck!

Hugs!

Lesley
 

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whats going to happen to me today

Hi Kiara,

I hope your appointment went ok today. Im sure you took your list, or at least i hope you remembered to. As i said to you before you know your body better than anyone else.

I have been thinking of you, please let us know how you got on

Take Care
Jane
x
 

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Discussion Starter · #6 ·
Hi Guys - thanks for geeing me up. I had my list all ready to print and then disaster struck because the software was incompatible so i had to leave it behind.... nightmare.

So i sat there like a mouse with a completely blank brain but fortunately hubby came to the rescue and cued me about things id forgotton. I didnt say it all but consultant was a man of few words anyway. He asked many questions which i answered as best i could.

He says he thinks i have autoimmune problem and the difficulty now is figuring out which one which could take a while as tests not always supportive/conclusive. He mentioned both lupus and syjorgens (sorry about spelling) and seemed concerned about my rash, symptoms, cold hands and white count. So he sent me for further bloodwork and wants to see me again in January - yes January despite the receptionists attempts to try and persuade him to delay me until March as they are busy.... haha

So im a little tired and dazed about everything right now - gonna have some tea and a quiet night in to digest it all. Will come and talk sometime tomorrow maybe - thanks for all your help and hope you are all feeling good today. Take Care.

Kiara
 

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Kiara,

Well done!

I do think that sounds like a pretty good appointment as he is investigating further!

Remember to take that same list next time!

Hugs!

Lesley
 

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dear Kaira, i hope you feel better about your apointment , try not dwell to much on this, as you know it can take long time to dx, but most of all its not in your head, so get that out now, :hehe:

you have a chilled night now with dh, take care hun Lin xx
 

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So far so very good Kiara
Now, get your list printed or even hand written out for future reference. See if there's anything that got missed out in the consultation.

By the way there's nothing wrong with taking anti depressants. Going through all this is very depressing and there are often very high levels of anxiety even in people who are not normally prone to it. So don't dismiss them out of hand.

I hope you can find some diversions meanwhile, and focus on the positive. Enjoy time with your daughter for example and look seriously into stress reducing techniques. Even the simplest breathing exercises can be most helpful. Decide how you are going to deal with Christmas to minimise the stress that usually brings, and find ways of pampering yourself. :)
Worrying about anything until the next appointment serves no purpose.

Hugs
Clare
 

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Discussion Starter · #12 ·
Hi yes im trying to be positive - im a bit shaky today but i think thats just a bit of shock and worry really! Im trying to take control of the situation and figure out what my options may be. Ive called my employer and they have said they will support me and are finding out what my options are for my return to work as i was explaining how tiring it can be and how much weaker i feel. Once i have all my options im going to sit and try to decide what i really should do....as two family members have now advised me it may be early days to try and throw myself into a FT nursing course, what with the physical side of it. I guess i could always defer my place and see how i get on at work first and then the option is there for later if i feel i can do it.
 

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Hi Kiara,

It sounds like a very good appointment. You'll see how things go from here and take it a day at a time. I will take a while to know eactly what's going on but you were taken seriously and hubby stepped in to help too!

Sounds all good to me :)

hugs :hug:
Katharine
 
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