Hello Pilot and welcome 
I'm sorry to hear that you are feeling so bad. I think many here can sympathise and share your frustration. Obviously SLE is a terribly complex and varied disease with people experiencing quite different symptoms and in varying degrees, so yes, many people will share some of your symptoms while many others won't.
You don't say much about yourself in terms of your illness. For example, have you been diagnosed long? What treatment are you on? Do you have a good rheumy that you see regularly? and do you always feel this bad or is it a question of flaring from time to time. I'm asking that last because it seems to me that you shouldn't always be feeling so bad -one would hope not at any rate.
Maybe with a little more info we can provide more support and useful advice
bye for now and hugs :hug:
Katharine
I'm sorry to hear that you are feeling so bad. I think many here can sympathise and share your frustration. Obviously SLE is a terribly complex and varied disease with people experiencing quite different symptoms and in varying degrees, so yes, many people will share some of your symptoms while many others won't.
You don't say much about yourself in terms of your illness. For example, have you been diagnosed long? What treatment are you on? Do you have a good rheumy that you see regularly? and do you always feel this bad or is it a question of flaring from time to time. I'm asking that last because it seems to me that you shouldn't always be feeling so bad -one would hope not at any rate.
Maybe with a little more info we can provide more support and useful advice
bye for now and hugs :hug:
Katharine