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When you just can't get out of bed

449 Views 7 Replies 8 Participants Last post by  elle-co
I woke up this morning and just could not get out of bed. :mad: I managed to print something off and a friend came by to take it to my teacher, but I felt so weak and helpless... all I could do was lie in the bed and sleep and sleep. I couldn't even use my wheelchair to get to the bathroom so (TMI!) I just grabbed one of my diapers-- good thing too because it was about 14 hours I stayed in the bed. Even now I'm just about ready to collapse from doing two loads of laundry and microwaving dinner. It was totally unpleasant. I'm used to at least being able to do most things, even if it's harder than for other people!

What do you tell yourself when you have to miss class or work? Do you feel guilty or do you tell yourself you legitimately needed it? I feel like this lazy layabout, but I know if I don't have lupus I do have something genuinely wrong... and I even tried to go to class and my body gave out! So even though I feel guilty about missing classes I don't see any way I could have managed.
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I nkow its easy fr me to say don't beat your self up, but don't. ive just done hubby sandwiches for work, hooverd through down stairs ,washed pots, now back on bed, im done in, am i lazy??

We can only do i supose what we can do, i feel right now that ive been on nights, No i have been to bed really i have, I knoiw its a bum when we have to do hardly nothing becasue our body's wont let us, but just have to wait for it to pass, easy of me to say i know, very hard to aply it though,

you take caree of your self, and just go with the flow,
hugs Lin xxxxxxxxxxxxxxxxxxxxxx
Hey (((((Rachel))))) :hugbetter:

You know, at the moment I have about four projects due in a couple of weeks for two different university courses, five projects due within the next month for another course and a braille exam I absolutely have to take this week. I woke up this morning with a fever again and feeling like someone spent the night beating me with metal pipes and so I've decided that for the next couple of days it's going to be DVDs, bubble baths, good food, a lot of sleep and a lot of rest.... And if in a couple of days I'm not doing any better, then I'll just carry on resting and relaxing and taking it easy until I am...That's not being lazy, that's being sensible and responsible for one's health! So please don't think you're lazy for not going to class; it was without a doubt the right thing to do for your health.

Sometimes we have to take it easy and sometimes we have to stay in and we're forced to skip classes and maybe miss a deadline or two... The most important thing I think is to take good care of yourself and to try and be sensitive to your body's needs and limits so that your health doesn't suffer. I realize university is important to you, it's important to me too, but if your health suffers then your university work will suffer too in the long term.

I think you should talk to your docs about not being able to get up from bed today, especially if this is something that hasn't happened before...

Take good care of your self and I hope you feel better very soon :)


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Hi Rachel,
Oh you poor thing. No don't feel guilty, it is obvious that with everything you have had going o that you have over done it and this is your bodies way of forcing you take a rest. So that's what you need to do. Get rid of any pressure, talk to your teachers and explaing and see if you can get cut some slack and then try to use your energies to make your self feel better by resting.
I would also sau though that if this is not normal for you, you should mention it to your doc.

I hope you mange to get some r and r and are feeling beter soon.

Take Care

Cassie :)
Hi Rachel,

If you had tried to power on you might not only have lost today but several others as well. It is very important to listen to your body. Personally I would have skipped the laundry also unless I was in dire need.

I hope tomorrow is a better day for you.

Take care,
Hi there,
I have also labeled myself lazy in the past. For years before I was diagnosed, I always wondered why I was so tired all the time. I would see other people my age doing more, accomplishing more and I wondered why wasn't I as ambitious? Now I try not to compare myself to "healthy" people, because they have the energy to do more and accomplish more. Taking care of yourself is not selfish or lazy, and you shouldn't feel guilty. Next time you need a day to rest and recuperate just remember that you are taking care of you!


I am sorry, your having such a terrible time of it. I hope it doesn't last.

Please be patient with your body. It is best to give in, when feeling so weak, and bad. Your body has special needs, because it is fighting an awful disease.

Try not to beat yourself up, for what your not able to do. I don't know how long, you have been ill, but I think it is a process, we go grief.
Trying to accept, we are different, and can't do what healthy people can do.

It is harder for those of us, that like to produce, I am sure. Some, are naturally more ambitious than other's, so the struggle to accept, we are disabled is more difficult.

Rest, stay hydrated, and like Chloe suggested just take good care of yourself, in general. Hopefully, this bad spell will pass, soon and you will be back to feeling better soon.

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It sounds to me that you are listening to your body and doing the best possible thing. You are certainly not lazy, you are doing whats best and putting your health first!!!

Well done to you:)

Elle x
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