Hi
I have sle and many other associated conditions as well as a heart problem which I have noted on various threads.
Last Wednesday I had to go to the drs and she called an ambulance to take me to a&e as she suspected a pe a I had chest pains made worse by lying down flat and bending forward. They admitted me as I have aps and wanted to make sure everything was ok. They finally discharged me on Friday night confirming I had costochondritis and a bad flare of sle (which I knew anyway!!).
I am on clopidogrel 75mg for my aps and plaquinel for the sle 400/200 alternating days.
EVERY time I get chest pains I end up being sent to a&e with a query of a blood clot somewhere and I thought by being on the clopidogrel would stop all this emergency. Needless to say everytime they admit me my body reacts severely to the stess of all the tests and drugs they put into me and now my joints are absolutely screaming at me and I feel horrendous.
The drs at the hospital are going to send St Thomas my blood results and have said I should contact my consultant's secretary as I need to have an emergency appointment with them as they dont think my sle is under control. Im due next at the clinic in Sept 08 and they said this is too far away. Does anyone know the procedure for getting your appointment brought forward as previously my gp has written and got no response?
As you can probably tell from the way Im babbling on, this has really affected me mentally, I cant think straight and am so sick of having this dreadful disease. Why does everything have to be an emergency?!
If anyone has any advice, it would be gratefully recieved.
Hugs to you all (gentle ones!)
Julia x
I have sle and many other associated conditions as well as a heart problem which I have noted on various threads.
Last Wednesday I had to go to the drs and she called an ambulance to take me to a&e as she suspected a pe a I had chest pains made worse by lying down flat and bending forward. They admitted me as I have aps and wanted to make sure everything was ok. They finally discharged me on Friday night confirming I had costochondritis and a bad flare of sle (which I knew anyway!!).
I am on clopidogrel 75mg for my aps and plaquinel for the sle 400/200 alternating days.
EVERY time I get chest pains I end up being sent to a&e with a query of a blood clot somewhere and I thought by being on the clopidogrel would stop all this emergency. Needless to say everytime they admit me my body reacts severely to the stess of all the tests and drugs they put into me and now my joints are absolutely screaming at me and I feel horrendous.
The drs at the hospital are going to send St Thomas my blood results and have said I should contact my consultant's secretary as I need to have an emergency appointment with them as they dont think my sle is under control. Im due next at the clinic in Sept 08 and they said this is too far away. Does anyone know the procedure for getting your appointment brought forward as previously my gp has written and got no response?
As you can probably tell from the way Im babbling on, this has really affected me mentally, I cant think straight and am so sick of having this dreadful disease. Why does everything have to be an emergency?!
If anyone has any advice, it would be gratefully recieved.
Hugs to you all (gentle ones!)
Julia x