Hi to you all.
Iam not having a good time at the moment, and just wanted to write about it.
I have just been to see my consultant and he wants me to have yet another M.R.I scan, as i my right side has been affected by a 'flare' and is now much weaker than it should be, so i guess he wants to see if i have had a bleed in my brain???
I have been taking lots of meds this year, planqunil, morphine, anti sickness tabs,high cholesteral tabs, omeprazole for my tummy pains, these i have had for the last 2 yrs, and yes they have made me feel better on and off, but i have just started to have my knee blown up like a ballon, great pain in it, then it feels numb and then just goes away, whats that all about? i have not had that before?? then the other leg did the very same thing? is this a new thing for me or what?
If i don,t take my meds i fall apart, i can't walk or do anything much, the other thing is i can't take oral steriods, they just make me feel sooo ill, although i can have the injections and the I.V type, juat not the tablet form, why i don't know.
Im worried that i have been on the morphine for over 2 yrs now and i wil be addicted to it, i have no idea how to get me off of it, if i do start to down the dose i feel terrible, and can't walk with the pain in my legs/body, so do i have to be on this for the rest of my life?
So sorry to go on but i have had these things on my mind for a while now, htis things scares the c***p outa me, so i tey not to think about it to much, i just think that the meds i'm on are to many, i have 24 repeat drugs thats loads........oh and i also have to self catherterise myself as the lupus has damaged the nerve endings in my bladder so i no longer ever feel that i want to go, has anyone else had this before?
I would be pleased to hear from anyone about there meds etc, I'm fighting a cold at the moment so thats why i could be down at the moment, i have read most of the books on Lupus, so i have tried to educate myself on the subject but just feel at a loss sometimes.
The one thing that iam grateful for is my husband, he has been with me through it all, and even though i have to go out in a wheelchair sometime, he said to me that he would push me to anywhere i want to go, (bless him), so why do i feel so down this last past week??
Anyways enough of me going on, just hope to here from some one soon.
Thanks for reading this
Take care to you all