Joined
·
24 Posts
Hi all, well a quick summary, was dx with lupus six years ago after have symtoms since my teens now in my 50s, was dx on med history as all bloods showed was pos RF, high crp, and leaking protein and blood in water.
About six months after dx I had the pleasure of a new rhumy who hated the world and un-dx me, about a year ago I found a great new g.p. who sent me back as I was so much worse, guess which doc I had still decided I could not pick and choose so stayed with it. On the first appointment with her she dx fibromyalgia without the tender point test, but said see would do more tests, so that was fine they were still looking into it, on my last appointment with her see said I did not have RA or lupus but would treat my symtoms by writing to the doctor for him to prescribe pred and hydroclosyquinine please excuse spellings the same drugs she had taken me off years before to go with the amitripaline that she had already supplied, also during this time saw the kidney specialist who supplied high blood pressure tablets and signed me off as she said I was leaking protein because I smoked. My g.p. is going up the wall with them as I am not due now to see the rhumy untill december and he says that smoking has nothing to do with it as in his opinion I have some sort of auto immune thing going on as I have all the symtoms including a molar rash on my face, beginning to think that I will never get a proper dx untill I can afford to go private, which I am considering.
About six months after dx I had the pleasure of a new rhumy who hated the world and un-dx me, about a year ago I found a great new g.p. who sent me back as I was so much worse, guess which doc I had still decided I could not pick and choose so stayed with it. On the first appointment with her she dx fibromyalgia without the tender point test, but said see would do more tests, so that was fine they were still looking into it, on my last appointment with her see said I did not have RA or lupus but would treat my symtoms by writing to the doctor for him to prescribe pred and hydroclosyquinine please excuse spellings the same drugs she had taken me off years before to go with the amitripaline that she had already supplied, also during this time saw the kidney specialist who supplied high blood pressure tablets and signed me off as she said I was leaking protein because I smoked. My g.p. is going up the wall with them as I am not due now to see the rhumy untill december and he says that smoking has nothing to do with it as in his opinion I have some sort of auto immune thing going on as I have all the symtoms including a molar rash on my face, beginning to think that I will never get a proper dx untill I can afford to go private, which I am considering.