hi i'm kate i'm 44...i've been suffering with various symptoms of "lupus" for 4 years..the docs dont seem to be putting all the various "unrelated" visits to the docs together and getting a diagnosis...
first it was cfs then carpal tunnel syndrome then tendonitus, repetitive strain injury and now my most recent fibromyalga...good grief! is it just the norm for doctors to just treat the symptom your presenting with at the time rather than look at your ****** notes?!! i've seen 2 diff docs over the last 3 wks and not one of them have even given me a brief physical exam..they prob think i've got the lurgy!:lol:..any way after looking on the internet and finding this wonderful site i'm relieved to see its nothing personnal with the docs. thing is tho how can I be sure i have lupus? the symptoms do fit cfs and fibromyalga all be it with the little extras like itchy skin, waking in the night for a pee 2 or 3 times, swelling in my lower legs and feet, headaches that nothing will shift, tiredness and the bouts of bad wind..i can compete with my teenage son with this! My thyroid has gone mad too..i was diagnosed with hypothyroidism back in 2005 my readings as i remember it (although thats foggy at times) were only at 8..now after taking my thyroxin at a dose of 225mg per day for all those years and not having a problem its upto 31..is this unrelated or just another symptom of lupus?? i must admit i'm starting to feel like a hyprocondriac..oooh this hurts and that aches and dont forget this..thank god i've got a bloke who takes it in his stride and makes me a cuppa eventho i'm a walking desaster area! what do i do now? how do i tackle my new gp and get the refurral i need to get my diagnosis or at least an answer?
first it was cfs then carpal tunnel syndrome then tendonitus, repetitive strain injury and now my most recent fibromyalga...good grief! is it just the norm for doctors to just treat the symptom your presenting with at the time rather than look at your ****** notes?!! i've seen 2 diff docs over the last 3 wks and not one of them have even given me a brief physical exam..they prob think i've got the lurgy!:lol:..any way after looking on the internet and finding this wonderful site i'm relieved to see its nothing personnal with the docs. thing is tho how can I be sure i have lupus? the symptoms do fit cfs and fibromyalga all be it with the little extras like itchy skin, waking in the night for a pee 2 or 3 times, swelling in my lower legs and feet, headaches that nothing will shift, tiredness and the bouts of bad wind..i can compete with my teenage son with this! My thyroid has gone mad too..i was diagnosed with hypothyroidism back in 2005 my readings as i remember it (although thats foggy at times) were only at 8..now after taking my thyroxin at a dose of 225mg per day for all those years and not having a problem its upto 31..is this unrelated or just another symptom of lupus?? i must admit i'm starting to feel like a hyprocondriac..oooh this hurts and that aches and dont forget this..thank god i've got a bloke who takes it in his stride and makes me a cuppa eventho i'm a walking desaster area! what do i do now? how do i tackle my new gp and get the refurral i need to get my diagnosis or at least an answer?