Hi Jo did you get told that you had lupus as the first rhumy said yes i had it was stared on palequine.My last appointment another rhumy said he was not sure if that was what it was but i am still on the palequine.When i went to my own doctor he was more sure than the rhumy i would go with what my own doctor says as i have been going to him for years.I was at another doctor on tuesday for my feet as i have pulled a muscle in my foot and the first thing he said was i see you have lupus asked him how he knew and he told me it was on his computer from my last appointment at his clinic can you not ask for a new doctor as it is a disgrace that you would have to go private how do you get on with your own doctor can not ask him to send you to another rhumy Keep us up to date wlisabeth
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Hi Jo
how frustrating!
..I can truly empathise as I have had a similar experience...
I was diagnosed with RA nearly 15 years ago.... only to be told nearly 2 years ago that I might have RA with lupus overlap.
then about 6 months later (I think?) I was told that I just had lupus because my xrays had shown that there weren't enough erosion's on my bones.....
then only last week another rheumy siad that I have got an RA/lupus overlap because of my joint deformities
certainley puzzling to say the least
If being treated privately is an option then yes I would consider it...I went private years ago & it got me what I wanted at the time...however I didn't continue with it because I could see the same rheumy & have the same treatment on the nhs so I didn't see the point.
another thing to remember jo is that blood tests are not conclusive..they can show up positive one minute then negative the next (sorry I can't elaborate though as I am not very knowledgeable at all regarding tests etc :blush: )
are you on any medications at the moment jo? & what is your rheumys view on all this?
also,what is your gp suggesting now?
best of luck to you..hope you get some answers
:hug: karen x
how frustrating!
..I can truly empathise as I have had a similar experience...I was diagnosed with RA nearly 15 years ago.... only to be told nearly 2 years ago that I might have RA with lupus overlap.
then about 6 months later (I think?) I was told that I just had lupus because my xrays had shown that there weren't enough erosion's on my bones.....
then only last week another rheumy siad that I have got an RA/lupus overlap because of my joint deformities
certainley puzzling to say the least
If being treated privately is an option then yes I would consider it...I went private years ago & it got me what I wanted at the time...however I didn't continue with it because I could see the same rheumy & have the same treatment on the nhs so I didn't see the point.
another thing to remember jo is that blood tests are not conclusive..they can show up positive one minute then negative the next (sorry I can't elaborate though as I am not very knowledgeable at all regarding tests etc :blush: )
are you on any medications at the moment jo? & what is your rheumys view on all this?
also,what is your gp suggesting now?
best of luck to you..hope you get some answers
:hug: karen x
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